Long Covid KidS

Advocating for children

Hello 

 

 

If you are new, welcome! If you have been with us for a while, thank you for your continued support. 

Since Autumn 2020 we have been raising awareness amongst parents, caregivers, children & schools to provide evidence-based knowledge that supports informed decision-making.

 

What do we do?

 

  • Raise awareness of under-reported data on children, schools, and COVID-19. It's all referenced for convenience so you can check the source.
  • Advocate for children and school communities.
  • Draw together new & relevant information affecting children and provide a reliable source of information on how to reduce COVID-19 infection & Long Covid.

 

This week's newsletter at a glance.

 

  • Long Covid Multi-Professional Day Presentation
  • NEW Research on 518 children with Long Covid.
  • Schools Update.
  • Updated Stats on children.
  • Why Schools need CO2 Monitors.
  • Why run Long Covid Kids?
  • LCK Global - USA
  • Myth Busting
  • Update on who we work with. National Voices

 

With your support, our joint efforts make a difference. 

Warm wishes

Sammie, Fran, Nathalie and Hannah

LCK Team 💚🧡💚

LONG COVID MULTI

PROFESSIONAL DAY

Bringing together experts in medicine, physiotherapy, and occupational therapy to name a few, watch Sammie present to the panel on day two of the program. The day was organised by Rachel Moses, Consultant Respiratory Physiotherapist and President-Elect of the British Thoracic Society. 
Our founder Sammie gave a presentation to provide an overview of Long Covid in kids based on observations from the LCK support group, her own lived experience & research. 

RESEARCH

This week LCK  co founder Fran and researchers from Ireland, Italy, Germany, Russia and the US released findings from their study. 

 

Risk factors for long covid in previously hospitalised children using the ISARIC Global follow-up protocol: A prospective cohort study

 

This study looked at children's ongoing COVID symptoms (long covid) after discharge from the hospital. This is an important study because long covid in children has thus far only been reported in non-hospitalised children. The preprint, which has not yet been peer reviewed, is one of only around half a dozen studies that have been produced on children and can be found on our website.

 

A total of 518 children were included in the study which found that children over the age of six appeared to be at greater risk of persistent symptoms, as did those with a history of allergies. 

 

Until we have conclusive research, evidence and explanations, we must exercise an abundance of caution with the health of our children.

SCHOOLS UPDATE

Primary schools continue to house the greatest number of outbreaks or clusters of infections in educational settings according to Public Health England on Thursday this week.

 

Primary-aged children do not use lateral flow tests or masks. 

 

Gavin Williamson is reviewing mask-wearing in UK secondary schools by 17th May.

At LCK we believe that schools should be open and stay open,

but not at the cost of long-term health.

Children need fresh air.

#CovidisAirborne 

CO2 monitoring is a scientifically evaluated layer of protection.

Download Updated Awareness Pack

THIS WEEKS STATS ON KIDS

England only.

Learn More About Reducing Risk of Long Covid

WHY SCHOOLS NEED CO2 MONITORS 

Donate / Register for a FREE monitor

WHY RUN LONG COVID KIDS?

 

How can you support LCK?

 

  • Share a social media post
  • Share our fundraiser / donate (see below)
  • Share your Long Covid Kids story
  • Gift us your skills/time
  • Raise awareness within your local, parenting, and school communities
  • Read the BRAND NEW research on 518 children, inc non hospitalised children. See below.
 
Support LCK
 

Why do we volunteer?

 

 LCK currently supports over 2650 children who have not returned to their previous state of health since their COVID-19 infection. No one knows why some children get sicker than others, when or if they will fully recover. Getting a diagnosis is challenging, support services are very limited & there isn't a cure.

Prevention is better than cure.

Research is needed.

 
Join the support group

LCK GLOBAL 

“Variants are more contagious in children and that’s one of the reasons for this increase in disease in children we think,” said Dr. Gregory DeMuri, pediatric infectious disease specialist at UW Health. 

USA

MYTH BUSTING 

"Parallels are drawn with Myalgic Encephalomyelitis & chronic fatigue syndrome. "We  often jump to framing something new to frame it with something we already know" "We also know that what we are seeing with post #covid differs from those set of conditions"

John T. Brooks, M.D.
Chief Medical Officer, CDC COVID-19 Response
Centers for Disease Control and Prevention

 

 
Watch & Learn More

UPDATE ON WHO WE

WORK WITH 

 Long Covid Kids (LCK) is currently supporting projects with;

NIHR Long Covid Committee

NHS - National Health Service Long Covid Task Force

  NIHR - National Institute for Health Research Expert Group

WHO - The World Health Organisation Long Covid Forum

The APPG - Across Party Parliamentary Group (APPG)

ISARIC - International Severe Acute Respiratory & Emerging Infection Consortium

 APPG Fit and Healthy Child

Multiple Clinical Commissioning Groups

International Researchers 

International ZERO COVID Alliance

National Voices

Long Covid advocacy groups around the world including:

Wales, Ireland, Spain, Canada, USA, Poland, Germany, Netherlands, Switzerland, France, New Zealand, Portugal, Spain, Mexico

A number of leading children’s hospitals around the UK, and infectious disease pediatricians.

 

Fundraising CO2 monitors for schools with Safe Ed For All

Contact Us - info@longcovidkids.org

LCK runs on goodwill.

Donations of time, skills, fund all gratefully received.

Donate & Help Support Long Covid Kids

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