FUNDRAISER!!

Support the International FOXP1 Foundation with your purchase of this beautiful bracelet set. You can post on your social media sites and place bulk orders to save on shipping.

The set is $35.00 USD plus shipping.

BI-MONTHLY ZOOM CHAT

***NEW DATE & TIME***

The International FOXP1 foundation hosts a bi-monthly zoom chat for friends and family of FOXP1.  They are informal chats, led by the participants, on what every topic those individuals want to talk about.  The discussions have been very helpful in sharing information and stories about our Foxes, their development and coping strategies for caretakers.  They have also provided our Foxes the opportunity to say hi to one another!  If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below.  

The next zoom will be held on Thursday, June 23 at 9:00pm EDT.  Please join us!

JULY FOXP1 WEBINAR

***Please note the date and time change for this session.  It will now take place on Wednesday, July 6, 9PM EST.

Welcome to the FOXP1 Webinar series.  Chardell Buchanan, MA, RDN is a Registered Dietitian Nutritionist and mama to Benjamin who has Phelan-McDermid Syndrome. She serves the world by helping others see that making meals and eating healthy can be very simple. Through Chardell Buchanan Nutrition, she coaches mamas of a disabled child or a child with a rare disease who desire to have better health themselves so they can be strong and take care of their child. She gives them the tools to make meal planning and healthy eating for the whole family as effortless as possible. As a Registered Dietitian Nutritionist she has been featured on the Rare Mamas Rising and Because We are Strong podcasts and had an interview on the Hatching for Health television show talking about nutrition for rare mamas and their children.   She will provide advice to help you feed your child well, and take care of yourself.  There will be an opportunity to ask questions.  You can learn more about Chardell on her website: www.ChardellBuchanan.com

Please RSVP this event and include your name and email address, you will then receive an email with the zoom link.   This conversation is in English and it will be recorded and posted on our website. 

RARE-X DATA COLLECTION PROGRAM

The data collection program is still going strong and several more of our families have enrolled since last month.  Thank you to those who have taken the time to enroll and help move research forward.  We now have 40 families who have enrolled. As of now, the US is leading enrollment with 18 families, and the UK closely behind with 6 (as shown with the graph pictured).  It would be great to see a bigger scope of our families throughout the world.  Canada has 3, with France, Brazil, and Denmark closely followed with 2 each.  

If you are still unsure about why you should enroll in our data collection program, one big incentive is that having a robust database will enable the International FOXP1 Foundation to generate more interest from clinicians, researchers, and pharmaceutical developers to research, test, and develop drugs, therapies, and a FOXP1 natural history study.

If you have still not viewed the webinar explaining the program, there is a link below to the video on our foundation website, as well as the link to the enrollment form.  Let's take advantage of the opportunity this program presents to the community.

AFFILIATION/ASSOCIATION PARTNER!

Billy Footwear works with nonprofits to offer the ability to purchase their shoes at a discount, while also giving back to the nonprofit. They offer a 10% discount on their shoes when purchased through the link https://billyfootwear.com/?ref=foxp1, and give 5% back to our organization.

Please click on the link below to read more about it on their website.

FUNDRAISING!

You can now raise money for the International FOXP1 Foundation while shopping on Amazon.  IFF is now set up on Amazon Smile, all you have to do is use website smile.amazon.com, choose International FOXP1 Foundation as your charity, and shop as you normally would on Amazon - easy! 

NEW SOCIAL MEDIA ACCOUNTS

If you are on Twitter and/or Instagram, please look up and follow the International FOXP1 Foundation.  The Instagram page is under foxp1_intl.  The Twitter page is under FOXP1 Intl.