Integrative Reconnective Aphasia Therapy (IRAT) Winter Newsletter |
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**Please note that due to the length of the newsletter, if you're receiving this via email, your email may "clip the message." Be sure to click "view entire message" at the end of the email. Our newsletters will always end with a "subscribe" button.** |
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Creating a Dating App for Persons with Aphasia |
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Dating in an online world has its challenges, but dating online with Aphasia can add an additional level of difficulty given the lack of awareness people have about Aphasia. In February, we released a dating app survey to gather information about what features People with Aphasia would be interested in seeing on a dating app designed specifically for them. All of our respondents reported that they are currently using dating apps and 86% said they would be interested in a dating app specifically for a Person with Aphasia. In the future, we hope to advocate for Aphasia friendly additions to dating apps such as video messaging. However, currently, we do not have enough responses to draw a strong conclusion about what people are interested in seeing in the app. We would love if you would SHARE OUR SURVEY with people with Aphasia, caregivers, and speech language pathologists so we can receive more input on the project. |
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How to Get "LUCKY": Taking Control Over Your Recovery |
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As St. Patrick’s Day is upon us, and four leaf clovers and leprechauns decorate the ins and outs of our communities, I found myself questioning how the word “luck” could possibly be applied to those in our Aphasia community. How can we possibly discover luck in all this misfortune…how can we turn lead into gold? Read more for ideas on how to take control over your recovery. | | |
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"Aphasia" in the Headlines |
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Recently, the "Insider" wrote two different pieces about our very own patients who experienced judgment and ridicule due to others' lack of understanding of Aphasia. Aphasia awareness is key in improving communication between those with and without Aphasia. Using the word "APHASIA" in the news is a HUGE step towards increasing awareness, reducing isolation, and improving education on this important topic. We also want to thank John, Bryn, and Robyn for sharing their personal journeys and challenges, and helping to educate others. Read John's Story here. Read Bryn's Story here. |
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Caregiver Grief...A different kind of loss. |
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I think we often associate grief with death…we grieve for those who leave us physically, and are no longer here. However, grief is experienced in many forms. In the Aphasia world, I feel it is quite common for caregivers to experience grief…a lot of it. There is actually a word for this type of loss that is often experienced by our caregivers. The term has been coined “ambiguous loss,” which is any loss that’s sort of unclear and lacks a resolution. This blog shares more on ambiguous loss and provides suggestions for how we can help support our caregivers who are experiencing this form of grief. | | |
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In October, we welcomed Bryn Bowles to our staff! Bryn joined our team to help us promote Aphasia Education and spread Aphasia Awareness. If you haven't checked it out, visit Bryn's Corner on our website to hear her share technology tips that have helped her become a more independent Aphasia Survivor. We look forward to seeing all of Bryn's advocacy ideas come to life! She has been a wonderful addition to our team! | | |
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We've added NEW RESOURCES! |
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Our INTENSIVE online Aphasia therapy program continues to grow. We have completed 5 intensive sessions and have 2 more scheduled over the next few months. If you or your loved one are interested in our program, you can fill out our online application. You can also view a video of one of our patients sharing her experiences with the intensive program, as well as her mom's perspective of how our program was different from others and furthered her daughter's progress. | | |
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Next month, Brooke will be presenting a virtual in-service on Aphasia and the workplace to Silk Road Rising, a Premiere Media and Performing Arts Organization. If you are interested in having Brooke present to your staff, students, or workplace, you can schedule a phone call to discuss your request. In-services will be individualized based on your group's needs and interests. | | |
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We were lucky enough to have 3 guest speakers participate in our group sessions since the new year. First, Darlene Williamson, President of the National Aphasia Association (NAA), discussed new programs the organization will be offering and how we can get involved. Then, General Michael Hayden shared his personal journey with Aphasia, discussed how the Stroke Comeback Center has been crucial in his recovery, and even received a few tips and advice from our very own group members. Finally, Megan Sutton joined us to give an overview of and demonstrate how the Tactus Therapy apps can be used for home practice. Thank you to all our speakers who took time out of their busy schedules to meet with our group! |
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Pittsburgh Aphasia Support Group |
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Pittsburgh Aphasia Support Group, The University of Pittsburgh’s Pittsburgh Translational Research Initiative (PTARI), is proud to announce that they have started an Aphasia Support Group for the Pittsburgh area. They meet, once per month, right now virtually via Zoom for an hour. Their topics so far have been bringing a photo from home – most people introduced their families, and a “foodie” group, where they shared their favorite recipes, meals, and memories surrounding food. They have a guest speaker this month – Pam Benke from the Office of Vocational Rehab in Allegheny County to talk to the group about returning to work with new skill sets. You can join them on March 21 at 9 am. Next month, they are planning to discuss all things Pittsburgh sports! If you live in or around the Pittsburgh area and are interested in joining them, email their coordinator, Chrisa Kravetz, at aphasia.group.pgh@gmail.com. Like and follow their Facebook page: Aphasia Community Support Group Pittsburgh. They plan to be meeting in person in May, so stay tuned for updates! |
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