The Symptomatic Hypermobility | EDS HSD I Neurodivergence I Autism I ADHD I Dyspraxia I Tourette's + Charity |
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Welcome to our April newsletter! ☔ They say that April showers bring May flowers - and my goodness, have we had some showers this month! But that hasn't dampened our spirits here at SEDSConnective, as we share our highlights, including April as Autism Acceptance Month... |
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April - Autism Acceptance Month During April, we marked Autism Acceptance Month on our social media channels as well as in person. Our Chair & Founder, Jane Green MBE, was invited to talk on Autism and Neurodivergence at the EDS Echo healthcare student program and was exclusively invited as a Fellow to the House of Lords hosted by Chartered College on Ethical Leadership. More exciting education developments to come on this in the future! Jane also reshared her article from GetSurrey a few years ago to raise awareness of Late Diagnosis. ICYMI: you can read below | | |
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A community event at St Paul's Cathedral! SEDSConnective was invited to a special 'Warm Welcome Community Event at St Paul’s Cathedral in London. It was a chance to meet many other wonderful community groups and charities, with a special Evensong service. Networking and advocating opportunities like this are really important to us as a charity, and we are always delighted to be invited to take part in such wonderful community events. | | |
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Patient press on Migraines Natasha Green, a member of SEDSConnective was interviewed for The Telegraph on her life with severe migraines, neurodivergence and her hopes for the future. Great article and you can read more of it here ! |
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Government Reform of the Disability Benefits System As some of you have seen, the Government (UK) is proposing a reform of the disability benefits system, notably the Personal Independence Payment (PIP), and the proposal could have life-changing impact to those most in need. We urge you to take action so that we can have a say in what happens next: 1.Read the consultation document here 2.We encourage you to respond to the consultation, via the online form, email, post. All options are outlined here We will be taking part and sharing our response to the proposal and update you once it is submitted. | | |
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New Blog! "Walking the path of thorns with Hypermobility EDS and Dyslexia" Thank you to SEDSConnective volunteer and member Solomon Ballin, age 27, for writing our latest blog for us.
"I was diagnosed with dyslexia at 12 years old, it is said that I could also have other neurodivergence conditions like Dyscalculia and ADHD, although neither are diagnosed..."
To read Solomon's blog, please click below, and if you would like to share a story with us, please get in touch. | | |
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May is Hypermobility (EDS HSD) Awareness Month May is an important month in our calendar as we mark the awareness of Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders. We also celebrate the acceptance of symtomatic hypermobility for those unable to have a formal diagnosis. To celebrate, we have arranged for The Crawley Mall and Brighton Pier in Sussex, England which will be turning Orange to mark the first awareness day. We need Awareness and Acceptance as the leading Neurodivergent and Symptomatic Hypermobility Charity, and are asking our members, followers, friends and families to help support us by sharing our social posts and spreading the word Thank you | | |
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Exclusive Webinar with Dr J. Eccles We are absolutely delighted to share that we have an exclusive webinar with our Patron Dr Jessica Eccles on the Connections of long Covid and Hypermobility. This webinar is following her recent contribution in a publication in medical journal BMJ Health and in the press; Daily Mail and The Guardian on and the findings that '30% of people with hypermobility (GJH) are less likely to recover from long Covid' The webinar is on 19th May online via zoom. Please sign up here: | | |
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👉 We are looking for lots of volunteers to help with the day-to-day behind the scenes at SEDSConnective. In particular we'd love support from proactive animators with a passion for hypermobility and neurodivergence, copywriters and social media support. Please take a look at the volunteering section on our website for more information on how to apply as well as current job specifications here. Thank you! The SEDSConnective Team 🧡 |
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