REGISTRATION CLOSING APRIL 10th - PLEASE REGISTER NOW TO JOIN US!

The International FOXP1 Foundation will be hosting its first in-person meet up and conference on June 21-23, 2023 in Mineola, NY (near both the JFK and LaGuardia airports). 

We are pleased to announce the guest speakers at our Family Conference. They will be:

• Dr. Alex Kolevzon, Clinical Director Seaver Autism Center for Research and Treatment. Professor Psychiatry and Professor Pediatrics.  Dr Kolevzon's presentation will be on genetics and medication to deal with FOXP1 issues.  You can read more on his bio here. [link]   https://www.foxp1.org/_files/ugd/905b97_866a9b0e8441474caa82321e25aebb33.pdf

• Dr. Cora Taylor, Assistant professor and clinical psychologist at Geisinger Autism & Developmental Medicine.  Dr Cora Taylor's presentation will be on puberty and behaviour issues.  You can read more on her bio here: https://www.foxp1.org/_files/ugd/905b97_600ee5770dab4b158a94c40b5fc953c0.pdf

• Dr. Ruth Braden, Research Coordinator & Speech Pathologist Speech & Language at Murdoch Children's Research Centre.  Dr Braden will present her research on "Severe speech impairment is a distinguishing feature of FOXP1-related disorder".  You can read more on her bio here: https://www.foxp1.org/_files/ugd/905b97_585c6c748da041808cbf8ff0f9fa6318.pdf
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We currently have over 120 people attending, representing five countries. Check out our website for more information on our guest speakers and scheduled events. Please consider joining us in person and sign up with the link below. Registration will close April 10th!! As a reminder, we are in the process of fundraising for this event and will have money available for travel support for families who may have a need - please reach out to cdury@foxp1.org if assistance is needed. We hope to see you there!

WE NEED YOUR HELP!!

The Foundation needs your help to get sponsors for our Family Gathering & Conference. Please share this flyer with your family, friends, and colleagues.

THANK YOU!!

A big Thank You to Mid Penn Bank, who is graciously sponsoring the 2023 conference at the $2500 level. Their support is very much appreciated.

LOCAL FUNDRAISER

If you happen to be in or around Hummelstown,PA, please consider stopping in to Rubber Soul Brewing Co, who has graciously pledged to donate $1 of every 16oz Weekender pour for the entire month of April. Thank you for your support!!

RARE-X DATA COLLECTION PROGRAM

RAREX has announced that the International FOXP1 Foundation currently has 130 families enrolled in the data collection program ~ ours is now among the largest populations at RARE-X ~ congratulations to us all!! Because of this success, we will have an opportunity to compete for several substantial grants that will be used for research; our goals now are to get more enrollment and to get those who are already enrolled to upload their genetic report. At the end of the challenge period, those rare disease communities with the highest enrollment will be most desirable to researchers, and the grants would be used to support those researchers' data analyses. This is an important opportunity to push FOXP1 research forward through our grassroots RARE-X participation, so please do participate! Follow the link below.

If you have enrolled and not already uploaded your genetic report, we are asking you to upload the genetic report as soon as possible, as well as fill out any surveys you may have received. If you are unsure on how to upload a genetic report, please see the video below. Thank you for your attention and consideration!

MONTHLY ZOOM CHAT

The International FOXP1 foundation hosts a monthly zoom chat for friends and family of FOXP1.  They are informal chats, led by the participants, on what every topic those individuals want to talk about.  The discussions have been very helpful in sharing information and stories about our Foxes, their development and coping strategies for caretakers.  They have also provided our Foxes the opportunity to say hi to one another!  If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below.  

The next zoom will be held on Saturday, April 15 at 3:00pm EDT.  Please join us!

FUNDRAISER - GREAT GIFT IDEA!!

Support the International FOXP1 Foundation with your purchase of this beautiful bracelet set. You can post on your social media sites and place bulk orders to save on shipping. They would make great gifts - Mother's Day is just around the corner.

The set is $35.00 USD plus shipping.

STUDY OPPORTUNITY FOR AGES 13 and OLDER

The Seaver Autism Center is studying behavioral and psychiatric features of FOXP1 syndrome in adolescence after puberty onset.

If interested, please contact Tess Levy at tess.levy@mssm.edu.

AFFILIATION/ASSOCIATION PARTNER!

Billy Footwear works with nonprofits to offer the ability to purchase their shoes at a discount, while also giving back to the nonprofit. They offer a 10% discount on their shoes when purchased through the link https://billyfootwear.com/?ref=foxp1, and give 5% back to our organization.

Please click on the link below to read more about it on their website.

SOCIAL MEDIA ACCOUNTS

If you are on Twitter and/or Instagram, please look up and follow the International FOXP1 Foundation.  The Instagram page is under foxp1_intl.  The Twitter page is under FOXP1 Intl.