The Symptomatic Hypermobility | Ehlers-Danlos | Neurodivergent Charity based in Sussex & advocating well beyond. Welcome to our November Newsletter
November is always an exciting month, as we see the change of season into Winter and everyone starting to get ready for the festive period. We are delighted to share our latest news with you and everything that's been happening recently at SEDSConnective...
🌙Wakehurst 10th Anniversary
We have been incredibly lucky to be offered a series of FREE tickets to the Wakehurst Place Glow Wild Event this month and in to December.
These have been generously gifted to us as part of the Community Access Scheme. We have several members who have registered for these free places and we cannot wait to hear all about your experience there and see your photos!
Please send them to us if you are happy for us to share with our community
ℹ️ National Children and Adult Services Conference
Jane was delighted to attend the conference in Bournemouth today (30th November) - the annual opportunity to hear the latest thinking on key policy and improvement agendas in social care, children's services, education and health.
Find out more about the conference including the keynote speech by Helen Whately - Minister of State (Minister for Social Care) and sponsors here:
We are delighted to be featured as a go to supporting charity on the Versus Arthritis website in their section about Joint Hypermobility, Ehler-Danlos Syndromes and Hypermobility Spectrum Disorders.
This information is hosted on their website which is frequently visited and trusted by many health professionals, but also used on leaflets in healthcare settings and hospitals, as well as regularly given to patients.
We are extremely proud of this and welcome our members to take a look and share. Thank You.
Six Practices to Retain Disabled and Neurodivergent Staff.
Jane Green, Chair & Founder, recently wrote an article for Schools Week Publication that was published this month.
The article highlights ways for schools to help look after their disabled and neurodivergent staff, to avoid people feeling that they have to leave.
"....I was disbelieved by colleagues, medical practitioners and occupational health providers. I took early retirement at 53, but with the right support I could have remained in work...."
We'd like to take this opportunity to wish all who celebrate it - our members, friends, families and community a very Merry Christmas and a Happy New Year!
