EDS Society - Global Learning Conference

Our Chair Jane Green flew to Dublin this month, as a keynote speaker and advisor for the Global Learning Conference.

We will be sharing more on her successful trip very soon - so watch this space! 👀

Research Project - SEDSConnective Pain Advisor; Bethany Donaghy.

A request for participants.

We've been asked to share this study to further understanding of how autistic young people experience pain by identifying factors which affect pain disclosure.

The PhD pain researcher is looking for young people & parent/carers for the survey.

Parents/carers will support the young person.

You must be:

1. Autistic and aged 11-15

2. Non-autistic and aged 11-15

And parents/caregivers must be:

1. Over 18 and have their child/young person participating in the study

Questions will ask about psychological factors of pain (I.e. anxiety), descriptions of pain and factors for disclosing pain.

Participation will include the chance to win 1 of 5 £20 Love2Shop vouchers.

To participate, click the link below:

https://ljmu.questionpro.eu/t/AB3uxfOZB3vcul

For further questions please contact Bethany Donaghy: B.e.donaghy@2016.ljmu.ac.uk

The Late Discovered Club - Podcast

The Late Discovered Club is a podcast that gives late discovered autistic women and marginalized genders a voice, with real life self-discovery stories, and compassionate conversations with some truly incredible women and people.

Created and hosted by Psychotherapist Catherine Asta whose own self discovery came at 42, with the behind the scenes technical expertise coming from her eldest daughter Caty Ava.

In each episode Catherine will be exploring real and empowering stories of late discovered autistic women and people from all walks of life - through an intersectional lens - helping to deconstruct stereotypes, and giving the next generation visibility.

Listen to the podcast interview with Jane Green here

Back to School!

September sees the return to school for many pupils across the country.

We are proud of the work and research we have been part of that supports the wellbeing of neurodivergent children and young people, including our infographic showing the common symptoms of Hypermobility.

It is important that schools and education settings recognise the additional measures needed to be able to help children.

➡️Co-Occurring Physical Health Challenges in Neurodivergent Children and Young People: A Topical Review and Recommendation.

This paper has had over 10,000 views and was written by SEDSConnective Pain Advisors Bethany Donaghy, Dr David Moore and Chair & Founder Jane Green.

The article presents a topical review of the literature considering evidence for increased physical health concerns within neurodivergent populations, particularly autistic individuals, with a focus on the impact that these physical health concerns may have in an educational setting.

Read the full paper here

➡️Autism: 5 Adjustments Needed in your Classroom - tes Magazine Article

As research shows that neurodivergent students are more likely to experience regular pain, expert Jane Green explains what additional support needs to be put in place.

Read the full article here

➡️UK School Toolkit for EDS and JHS

Jane Green MA Ed. voluntarily led on the content creation for the Toolkit, liaising with teachers, parents, carers and medical professionals, and helping with the overall design and accessibility of this fantastic, online resource. This has been her passion and her initial idea after her diagnosis.

Find out more about the toolkit here 

New Blog - The Lying Down Work in Alexander Sessions (‘Constructive Rest’) - Part II

by Natalie Gibellini Alexander Technique Teacher

"In an Alexander session, we take particular interest in the relationship between the head, neck and back and how this affects the way each person coordinates their whole body.

Gently handling this region gives both myself and my client insight into their pattern of muscle use in this important area.

This measured and considered touch can also suggest the muscles ease any tendencies towards tightening..."

Read Natalie's full blog here 

Benefact Group | Movement for Good Awards

➡️ WE NEED YOUR VOTES!

Please nominate us today, and help us to be in with a chance of winning £1,000 to help our community!

The second £1,000 draw in this year's Benefact Group Movement for Good Awards is fast approaching, so please get your nominations in by midnight Wednesday September 6th to ensure we are in the running.

The first draw saw 150 x £1,000 winners representing a wide range of charities.

Help SEDSConnective to be in with a chance in the two remaining draws of the year!

➡️ VOTE NOW HERE

Charity Name: SEDSConnective

Charity Number: 1199724

Thank You 😊

Fundraising Help 🙏🏼

As a voluntary charity we rely entirely on the generosity of funders and donations to continue what we do.

The fundraising environment is extremely challenged currently, and funds are very hard to come by, but we know we are making a difference in health, education, social care and more.

At SEDSConnective all money that we raise goes directly to our members, and helps us to run our charity.

It is really easy to donate to SEDSConnective - and any amount is very welcome.

Thank you

➡️DONATE HERE

➡️LOCALGIVING

➡️HORSHAM COMMUNITY LOTTERY

➡️COOP COMMUNITY FUND

 Do you want to volunteer for SEDSConnective?

We are delighted to welcome on board new volunteers, but are always looking for new people to come and join our team.

We are currently looking for a website content manager, IT Technician, events coordinator & more.

If you are interested in joining our friendly team and have skills or fundraising ideas - please get in touch. We'd love to hear from you!