RARE-X DATA COLLECTION PROGRAM

Thank you to all who attended our webinar about our data collection program, and to all of the volunteers who worked so hard in getting this off the ground and making it successful.  If you were unable to make the webinar, it was recorded and can be located on our website.

The data collection program is now live, and you can find the link to enroll at the link below as well.  Enrolling in the data collection program has many benefits, not the least of which is being able to have an idea of a count for our community. Nobody else is counting our numbers, however this could be an important step.  In order to have accurate numbers however, there needs to be participation.  The enrollment can take up to three hours to complete, but you are able to go back and change answers as needed.

This is an exciting step forward for all of us.  Let's take advantage of the opportunity this program presents to the community.

MONTHLY ZOOM CHAT

The International FOXP1 foundation hosts a monthly zoom chat on the third Saturday of every month.  They are informal chats, sometimes with speakers, and have been very helpful in sharing information and stories about our Foxes.  If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below.  

The next zoom will be held on Saturday, March 19 at 3:00pm EST.  Behavior Strategies will be the topic, and there will be two guest speakers.

Dr. Linda Heitzman-Powell is one of the guest speakers. She is currently the Director of Community Research at the KUMC, is an active member in the ASD community who has testified before the Kansas Legislature, advocating for evidence-based practices for individuals with ASD. 

The other guest speaker is Dr. Alice (E.) Zhang.  She is an assistant professor at the Occupational Therapy Education Department at KUMC, following her LEND fellowship.  She is a BCBA-D and an OASIS parenting coach, as well as serving as a Co-PI on a federally funded parent training grant. 

GOOGLE SEARCH

The FOXP1 website is now part of the Google non-profit program, which means we receive free advertising. The ads now show when someone searches for FOXP1 related keywords. This means when someone searches for FOXP1, various links to our website and other FOXP1 sources will appear as ads at the top of the search results, so it will be much easier for families to find information on the web.

Note that this does not replace what is in the "organic" search from Google. That is where you see lots of research articles. The more people visit our site though, the more we will show up in the organic search. As an example, if you search for foxp1 foundation, we are the first result now in the organic search. 

NEW SOCIAL MEDIA ACCOUNTS

If you are on Twitter and/or Instagram, please look up and follow the International FOXP1 Foundation.  The Instagram page is under foxp1_intl.  The Twitter page is under FOXP1 Intl.

AFFILIATION/ASSOCIATION PARTNER!

Billy Footwear works with nonprofits to offer the ability to purchase their shoes at a discount, while also giving back to the nonprofit. They offer a 10% discount on their shoes when purchased through the link https://billyfootwear.com/?ref=foxp1, and give 5% back to our organization.

Please click on the link below to read more about it on their website.

FUNDRAISING!

You can now raise money for the International FOXP1 Foundation while shopping on Amazon.  IFF is now set up on Amazon Smile, all you have to do is use website smile.amazon.com, choose International FOXP1 Foundation as your charity, and shop as you normally would on Amazon - easy!