MONTHLY ZOOM CHAT

The International FOXP1 foundation hosts a monthly zoom chat for friends and family of FOXP1.  They are informal chats, led by the participants, on what every topic those individuals want to talk about.  The discussions have been very helpful in sharing information and stories about our individuals with FOXP1, their development and coping strategies for caretakers.  They have also provided them the opportunity to say hi to one another!  If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below.  

The next zoom will be held on Saturday, March 9 at 3:00pm EDT.  All are welcome, but we would like to specifically invite parents of adult individuals with FOXP1 to join us for this discussion on health issues you would like to see addressed in research, as well to discuss what the future may look like . Please join us!

THANKS FOR JOINING US!

Our annual Open House was very successful, and we thank all those who were able to join.  It was wonderful to see how far we have come in just a year, and to hear about all of the exciting things planned in our future.

For those who were unable to make it, the link to the recorded video has been posted to the website, under Past Events and is also linked below,  and will be shared on social media as well.

RARE-X DATA COLLECTION PROGRAM UPDATE

The International FOXP1 Foundation currently has 194 families from 21 countries - we are so close to 200! Our goals now are to get more enrollment and to get those who are already enrolled to upload their genetic report. If you have enrolled and not already uploaded your genetic report, we are asking you to upload the genetic report as soon as possible. In addition, please watch for new surveys in the near future and be sure to fill them out.

Participation in this program can have important benefits for us and for researchers studying FOXP1 syndrome. When you participate in the FOXP1 Data Collection process, you will help accelerate research, therapy and drug development, as well increasing the FOXP1 knowledge base.  Rare diseases with the most families enrolled gain the most interest from researchers.
 

Again, thank you for your participation in the program; as always, the more we all participate (including with longitudinal surveys over time) the richer the dataset and more impactful the insights will be. If you have not yet registered for the RARE-X data collection program, or you have not checked your dashboard lately for new surveys to complete, please follow this link: https://foxp1.rare-x.org/

RARE DISEASE DAY 2024

Thank you to all those who participated in sharing on social media and elsewhere for Rare Disease Day. Your participation helps raise our awareness, and it was great to see so many!

FOXP1 BRACELET SET FUNDRAISER

Support the International FOXP1 Foundation with your purchase of this set. This beautiful set makes a great gift, don't forget Mother's Day is coming up. Feel free to post on your social media sites and place bulk orders. Your friends and family will be happy to support our efforts to move science forward.

Bracelet set is $35 plus shipping. 
  

AFFILIATION/ASSOCIATION PARTNER!

Billy Footwear works with nonprofits to offer the ability to purchase their shoes at a discount, while also giving back to the nonprofit. When shoes are purchased through the link https://billyfootwear.com/?ref=foxp1, Billy Footwear will give 15% back to our organization.

As an added bonus to those who have yet to enroll in the RARE-X data collection program, we would like to offer a gift certificate for $5 off Billy's Footwear for the first 20 families to enroll. After you enroll, please email scardillo@foxp1.org to obtain your gift certificate.