SEDSConnective February News! 🦘

SEDSConnective News

The Symptomatic Hypermobility | Ehlers-Danlos I EDS HSD Neurodivergence Charity. 

Welcome to our February newsletter on this leap year day! 🦘
This may have been a longer month than usual - but it hasn't stopped us from being busy - as we welcomed 3 new Trustees and 2 new Advisors to the team.  
Our Chair attended more events, including a trip to a university where she presented on Autistic/Neurodivergent Health & Education, a public think tank conference speaking on 0-5s, plus an exciting appearance on National TV to round up the month!
 
Here's what's been happening, and what's coming up...

Neurodivergence Affirming Day - 11th March We are calling out for a Neurodivergence Affirming Acceptance Day.  
Why? We are told for many years that our iissues are 'all in our heads' or due to social emotional environments. 
We hear what you are saying and we believe you and as the science is now coming forward we will believed. Neurodivergence body/brain connects and we need acceptance of our differences, Hopefully more research and funding. 
Most of all belief and our voice are heard!  
Please add to your diary and all ideas are welcome.

SEDSConnective are calling for a  Neurodivergence Affirming Acceptance Day.  
 
We are proud to be the Symptomatic Hypermobility (EDS HSD pgJH), Neurodivergent (Autism, ADHD, Dyspraxia, Tourettes, Dyslexia, Dyscalculia Dysgraphia plus) Charity, and supporting our neurodivergent communities 

SEDSConnective

Research opportunity with Bonnie Southgate - Calling all dancers!  
Groundbreaking new study on Hypermobility and Dance with SEDSConnective Advisor, Bonnie Southgate. 
 
Bonnie is looking for participants to take on joint hypermobility and its impact on muscle activity during dance. This takes place in London UK face to face. 
 
Research Criteria:
18 years +
3 + years dance experience
Currently dancing without injury
 
To join Bonnie in this exciting project, please get in touch below:

Email Bonnie

New Advisors! February saw us welcoming not one, but two new wonderful advisors to the charity.
 
Please join us in welcoming Dr. Lhara Mullins - Neurodivergent Academic
& Lecturer in Health Promotion and Alison Holloway - Dietician. 
 
Dr Mullins is a Neurodivergent Academic author and lecturer in Health Promotion at the University of Galway in Ireland. She  is a passionate advocate and active researcher on the topic of supporting Neurodivergent children and their families. 
 
Alison is a specialist UK dietician and currently working as a diabetes specialist for the NHS alongside running her private practice; The Unexpected Dietician. 
 
Alison brings 30 years experience and a passion for inclusive healthcare to support clients struggling with disordered eating and/or chronic illness such as HSD, POTS, M.E and MCAS. 
 
If you would like to get in touch with either of them, please reach out:

Get in Touch!

New Trustees! We are delighted to welcome 3 new Trustees who will be playing a very important part in the running of SEDSConnective as a charity.
 
We had a wonderful response to our outreach for new trustees. 
Thank all those who applied. 
 
Please join us in welcoming Amber Windsor , Joanna Fearnley and Vimala Jayaraman.
 
If you would like more information on becoming a Trustee for SEDSConnective, or any of our other current opportunities, please see below:

Volunteer for SEDSConnective

National TV Appearance for Jane Green! If you happened to be watching ITN 5News at 5:30pm on Wednesday 28th February, you will have been lucky enough to see our very own Jane Green MBE chatting with presenter Dan Walker on Autism/neurodivergence in the workplace. 

Jane joined Dan LIVE on air to discuss the iissues of workplace environments from her professional and personal experience as  an autistic person and spokesperson for SEDSConnective. She is aware there was a short time to cover most points 
 
We are so proud of Jane who spoke brilliantly on air and Dan was delighted to meet her also. 
 
See Jane's interview on 5News:

5News Interview

Upcoming Activities ➡️20 March 
Art Therapy Sessions 
at Liberation Art Gallery 
 
Interested applicants please email: kelly@sedsconnective.org
 _________________________________
➡️We also have our face to face
 "Monthly Meet Up" for any Brighton based members, friends and families.
The next session is on 22nd March at the Jubilee Library in Brighton, Sussex (UK) from 11am - 12:30pm - in the Community area. 
 
➡️We will be starting our monthly online talks for members only very soon! 
 
➡️Later this month SEDSConnective will be presenting on Neurodivergence and Symptomatic Hypermobility at Springfields Academy on the 13th March

Our full event programme can be found on our website:

SEDSConnective Events

We are looking forward to all the exciting developments that March brings and would like to thank you all for your continued support. 
 
If you would like to contribute to our monthly newsletter, volunteer or even raise funds for our voluntary charity- please drop us a line at general@sedsconnective.org
 
The SEDSConnective Team

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