We are officially falling into November! It has truly been amazing to watch BARE grow into something of inspiration and hope for all of our families in the BA community, and this is only the first year! As we head into the holiday season, we ask each of you to reflect on what you are thankful for. We at BARE want you to know that we are thankful for you, our supporters, as we could not be where are today without you. Best, Jen & Jordan |
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BARE has launched the Lend A Hand Campaign for this holiday season! The campaign will allow people from all around the country to sponsor, or adopt, a BA family in need. Between now and November 21, 2022, families can apply to be adopted and the community can select a family to help! For more information, please click on the button below! |
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Giving Tuesday GivingTuesday was created in 2012 to encourage people to do good. Since then, it has grown into a year-round global movement that inspire hundreds of millions of people to give, collaborate, and celebrate generosity. Stay tuned on how you can help BARE during #GivingTuesday! |
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Biliary Atresia Day: December 1st Join BARE on December 1st as we share with you the rare pediatric liver disease which has impacted so many families lives and how we reflect on this day. |
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BARE Symposium 2023 UPDATE! |
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Good news! Agenda's for both days of the symposium are now complete and speakers are set! We are working with Lurie Children's to post to the landing page which will be available for viewing. Check back soon! | | |
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If you would like to learn about how you can help sponsor the symposium, package information is now available! Please contact Jennifer.Lau@bareinc.org |
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A warm thank you to our friends and sponsors at COTA and Albireo, as our podcasts are here! We have 3 episodes to check out and are scheduled to publish more before the end of the year! Being A COTA Family Living With BA I'm Fine | | |
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BA In The News Our partners at Albireo announced the completion of patient enrollment in the BOLD study, the first, largest, and only global Phase 3 trial in patients with biliary atresia. They are on track to report topline data by the end of 2024, reinforcing their expected position as first IBAT inhibitor to market in biliary atresia. “It is terrifying to receive a diagnosis of biliary atresia for your newborn, and even worse, when you are informed that your child will likely need a liver transplant. We are very excited that the BOLD trial is fully enrolled, and we eagerly await the results, hoping that families will finally have an option that could help avoid a liver transplant.” -Jennifer Lau, Co-Founder and President, BARE Inc. |
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EMBARK Clinical Trial The EMBARK research study, initiated by our partners at Mirum Pharma, is a Phase 2b study evaluating LIVMARLI (maralixibat) in pediatric patients with biliary atresia. For more information on this clinical trial, please visit https://mirumpharma.com/our-science/disease-focus/ |
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We would like to thank Disruptive Advertising and 3A Gear for their generous donations and becoming BARE Founding Donors! As always, BARE thanks everyone for their kind hearts and generosity to the Biliary Atresia community. |
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If you would like to donate to BARE and become a founding donor, click on the button below! |
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