This issue includes: Texas Children's Hospital holds Day of Education and Hope,  Mayo study AE as common as Viral encephalitis, recent antibody in AE: GFAP,  Worse outcomes with LGI1 indicators, importance of wearing a Medical Alert bracelet.

Eoin Flanagan, M.B., B.Ch., an autoimmune neurologist at Mayo Clinic in Rochester, Minnesota discusses groundbreaking population-based study,

Mayo Clinic has found that autoimmune encephalitis is as common as its infectious disease counterpart. The finding underlines the need for precise diagnostic testing for people with encephalitis, as the autoimmune and infectious diseases require different treatments.

“EXTRAPOLATING OUR RESULTS TO THE WORLD POPULATION SUGGESTS THAT ABOUT ONE MILLION PEOPLE ARE AFFECTED WITH AUTOIMMUNE ENCEPHALITIS,” DR. FLANAGAN SAYS. “THE DISEASE BURDEN FOR AUTOIMMUNE ENCEPHALITIS—A CONDITION THAT JUST 10 YEARS AGO WENT UNRECOGNIZED—IS SIGNIFICANT.”

Go to full discussions that were at the 70th  American Academy of Neurology Annual Meeting.

International Autoimmune Encephalitis Society (IAES) is a Family/Patient centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. 

Driven by the knowledge that “Education is Power”, Int’l AE Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones on Face Book, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.

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