March 2022 Newsletter

Happy Spring, Happy Holi, Happy St.Patrick's Day, Happy International Women's Day and Happy March warriors! Spring has sprung and we hope you are enjoying the warmer weather and having a lovely start to your season.

 

There were so many great awareness campaigns during the month of March! World Down Syndrome Day is Celebrated on March 21st, World Tuberculosis Day is on March 24th, Neurodiversity week is March 21st-27th. Not to mention, Endometriosis Awareness Month, Brain Injury Awareness Month, National Colorectal Cancer Awareness Month and more! We share some information and resources for these topics in this issue. You can look forward to a blog feature from a fellow Endometriosis warrior. Our beloved Spoonie Small Business segment is front and center, featuring a brand new exclusive interview with our Spoonie Small Business entrepreneur of the month. Our Chronic Illness in The News segment rounds things out, with some great articles for you all to check out, and so much more! Let's get started!

World Down Syndrome Day

March 21st, 2022

Down syndrome is a condition in which a person has an extra chromosome. Down syndrome continues to be the most common chromosomal disorder. Each year, about 6,000 babies are born with Down syndrome, which is about 1 in every 700 babies born.

 
Down Syndrome Resources

National Colorectal Awareness Month

Colorectal cancer is cancer of the colon and/or rectum and effects people of all ages. However, it is suggested to be screened if you are over the age of 45 as colorectal cancer can appear without providing any symptoms. Below is a great link with more information about colorectal cancer, symptoms and screening. 

 
Colorectal Cancer Awareness

Spoonie Small Business

Christel Oerum

@diabetesstrong_ig

Christel Oerum is an entrepreneur living with Type 1 diabetes and is the creator of Diabetes Strong. Christel is a fitness enthusiast and has a wonderful philosophy on life, life with diabetes and has a positive mindset. We sat down with Christel to talk about her business, the correct terminology for people with diabetes, and ways you can be prepared to live life to the fullest with diabetes. Watch Christel's interview below. 

 
Links to Diabetes Strong YouTube, cook books, etc,.
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Chronic Illness In The News

Welcome back to our Chronic Illness In The News segment. Here, we share articles and any other documents which either involve, impact or surround our chronic illness community. 

 

We are expanding this segment further! If you have an article you came across yourself which you really enjoyed and want to see it in this segment, we want you to share it with us!  We want to hear your thoughts and opinions about the articles we post in this segment, and get a discussion going! (Thoughts and opinions can be about an article you came across, or about one you saw here!) This is a great way to connect with people within your community and a chance to have your voice be heard! You can send the articles and thoughts to our Newsletter Coordinator Megan, at megan.bocchinfuso@fightlikeawarrior.org with the subject line "Chronic illness in the news."

Attacks on Ukraine's Hospitals Will Cause Long-Term Harm to Health - Ukraine

From trauma-related injuries to chronic diseases, the effects of Ukraine's destroyed or damaged health facilities will cause harm for a long time to come. Attacks on hospitals and other health facilities have been a prominent -- and horrifying -- feature of the war in Ukraine.

How the COVID Pandemic Has Impacted Chronic Disease

With more than 950,000 deaths and close to 80 million cases in the U.S. alone, few would argue the COVID-19 pandemic hasn't had a devastating impact on Americans' health. Yet we may only be just starting to understand the true effects of the crisis.

Adobe UX Designer Lauren Dest Talks Building 'Design Decoder' Software That Makes Shopping More Accessible For The Color Blind

Lauren Dest is a senior experience designer at Adobe who works on e-commerce and marketing products for the enterprise. In a recent interview with me conducted over email, Dest explained the inspiration for Design Decoder came after a brainstorming session with her colleague Michelle Saad.

AmazonSmile Campaign

Thank you!

 

Our AmazonSmile donation campaign has raised nearly $100 since December. Wow! Our AmazonSmile campaign helps us give the great services and resources to support and advocate for those battling chronic illnesses. We wanted to take this moment to say thank you to everyone!

You too can join the AmazonSmile campaign and help us help others by simply adding Fight Like A Warrior as your charity of choice to your Amazon account. Every time you purchase something through them, Amazon will donate a portion of your total to Fight Like A Warrior. It is a small task with a very big reward, with no additional cost to you. Thank you so much to all of you!

Laura's Blog Post

1 in 10: Laura's Journey to an Endometriosis Diagnosis

Endometriosis devastates the lives of so many, yet so little is being done to tackle it. Many of us are suffering in silence! My name is Laura, I am thirty-five, and I was sixteen years old when I started experiencing pain around my periods.

Warrior Of The Month

Nic

Nic was diagnosed with Transverse Myelitis when he was 12. Nic struggles with mental health issues as well as addiction. However, he lives a life of truth and likes to show people he can keep fighting albeit the physical and mental struggles. Nic participates in weight training and likes to show others just how much he can accomplish through dedication and perseverance. 

Spoonie Meal Saturday

The next Spoonie Meal Saturday will take place on:  

April 30th @ 7:00pm EST/4:00pm PST
We will be making:

Chicken Burrito Bowls (serves 6)

 

One Saturday of each month, we will be going live on Instagram to bring you a virtual cook-along of a delicious meal meant for spoonies. These quick and easy meals can be altered to meet specific dietary restrictions and will be perfect for making on those days where you're low on spoons but don't want to sacrifice tastiness! We will be posting the recipe, accessibility requirements, and possible substitutions you might use for the meal each month in our newsletter. That way you have time to get your ingredients so you can cook right along with us if you would like to! These videos will be saved on our social media pages if you weren't able to come to the Instagram live or if you want to cook the meal again! We encourage you to submit your own “spoonie meal” recipes that you love to kelsey.calimer@fightlikeawarrior.org to help us build up this excellent resource for all others living with a chronic illness or disability and for the chance for us to make it in our cook-along! These can be recipes you have created yourself or ones you have found elsewhere and have grown to love!

Turn on AmazonSmile in the Amazon app to help generate donations!

Looking for a FREE & EASY way to support our mission to unite, empower, & advocate for those battling chronic illnesses? When you shop using AmazonSmile & select Fight Like A Warrior as your charity of choice, Amazon donates a portion of your total to our organization with no cost to you!

Have you checked us on on our social media pages? 

 

You can find so much more wonderful content that doesn't make it into our newsletter! Click the links below to be directed and be sure to interact, we love hearing from our community! 

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