Dates (plural) for the diary!

We have a regular member meet-up scheduled for the last Friday of the month to be held at Jubilee Library Brighton. Timing is 11am to 12.30pm. Next date is 28th April 2023. No need to book, just turn up!

Also coming in April; a Wakehurst get together (with free entry!)

#AutismAcceptanceWeek - In the Press!

We are #GoingGold...or rather Brighton Palace Pier & Crawley Mall will be!

This is from March 27th - April 2nd as part of #AutismAcceptance Week.

The Brighton Palace Pier will be lit up as part of the campaign to promote acceptance of the symptoms of autism, including hypermobility and other physical health issues. Jane Green, Chair of SEDSConnective which supports neurodivergent people with hypermobility, said: “Acceptance is key to tackling the loneliness and isolation often felt by autistic children and adults..."

Thank you to the Brighton Argus for sharing our story.

Read the full article here

Research Volunteers Please!

1. Brighton and Sussex Medical School, specifically a study led by our Patron, Dr Jessica Eccles, are looking for adults with a POTS diagnosis to participate. More details here.

2. Glasgow Caledonian University has a research participant request for any of you. More details here.

3. If you are trans/nonbinary and autistic, there is a research study here you might be interested in participating in.

Rare or Rarely Believed? Re Diagnosis...

Our Chair Jane, has a blog featured on the

Rare Diseases UK site.

Find out more about her blog here.

Webinar Video now on our site

Webinar video from our exclusive, popular November 2022 webinar available for all now. With research, insights and FAQ with ouir Patron, Dr Eccles. More here.

Fundraising for SEDSConnective

If you are able to, please donate to help us find more ways to deliver more activities and support for this great community. Donate here.

Chartered College

Our Chair's talk to educationalists was a hit a few weeks ago. We have access to the podcast. Some thoughts about the talk ".. a must listen! Yes - I’m biased - because this is what many of us are missing in schools (supporting our young people.)" Listen here.

Get Well Soon Bonnie!

Sending our warmest wishes for a speedy recovery to our SEDSConnective Advisor, Rehab Sports Specialist & Pilates instructor, Bonnie Southgate who recently fractured her spine. We are looking forward to a new blog from her coming very soon too!