HelpForPD.org July Newsletter |
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Learn more about what is happening locally and nationally. |
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Each month, we will be selecting a member of our community to highlight their amazing contributions towards helping those with PD live well today. This month we have selected Steve Hovey! Check out his story here |
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There are three new support groups forming in our area! Schenectady County and Warren County support groups are still in the planning stages but keep these on your radar if you live in those counties. Schoharie County Bi-Monthly: Every 2nd and 4th Tuesday of the month Senior Community Center, The Gathering Place 127 Kenyon Rd. Cobleskill, NY 12043. For more information contact Deb Dyer, deb.dyer@co.schoharie.ny.us (518) 295-2001 Schenectady County Starting in October More information to follow Warren County Start date has not been finalized More information to follow |
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Hope Soars Fundraiser With the ValleyCats! |
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July 22rd, 2023 Picnic at 5:30 pm; Game at 6:30 pm Benefiting the Hope Soars Parkinson's Research Fund at Albany Medical Center. $30 Ticket includes a Seat, Dinner and ValleyCats Cap! TICKETS: Call Mark Burek at 518-428-0056
Or bring a check or cash to Schott's PD Boxing at 10:30 on any Friday before July 22, 2023 |
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Virtual Educational Events This Month |
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Everything Parkinson’s July 3rd 3pm EST Care partners and loved ones are encouraged to join author and motivational speaker, Lianna Marie to address your questions about:
How to make difficult care decisions What to do when you’re isolated and have no help to care for your loved one Tips on dealing with cognitive decline and Parkinson’s dementia Tools for living with late-stage Parkinson’s including how to manage sleep difficulties, pain issues, hallucinations And more to help you find understanding and coping methods for living with PD
Dr. Gilbert Hosts: Genetic Testing for Parkinson’s Disease July 19th 2pm EST Dr. Roy Alcalay, a movement disorders specialist and expert in PD genetics, will help answer a myriad of questions about this complex topic, including: Who should get genetic testing? Is all genetic testing the same? If not, what type should I get? How do I get genetic testing? Does insurance pay for genetic testing? What will I do with the results of genetic testing? And more!
Dr. Alcalay will answer your questions LIVE, so be sure to register today and get those questions ready! |
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EVERY VICTORY COUNTS CHALLENGE |
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The Every Victory Counts Challenge celebrates every victory, big and small, and highlights the importance of exercise for living well with Parkinson’s. Participants create their own challenge for the month and choose to run, cycle, log walking miles, dance, box, swim, or any combination of activity to join in the event at your pace and your place. The event welcomes with open arms everyone from ultra-runners and cyclists to people who want extra motivation to walk around their block every day. This event takes place during the entire month of July! | | |
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Lifestyle Factors and Clinical Severity of Parkinson’s Disease |
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The purpose of this study was to explore the association of coffee drinking, aspirin intake, and smoking, with motor and non-motor symptoms in those with Parkinson's. The study involved a cohort of 35,959 American patients with PD. Here is what they found: Coffee drinkers had fewer problems swallowing but dosage and duration of coffee intake were not associated with motor or non-motor symptoms Aspirin intake correlated with more tremor, problems getting up, light-headedness, and problems remembering. Smokers had more mood-related symptoms: unexplained pains, problems remembering, and feeling sad. |
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Nutrition Study Looking for Participants! |
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Dr. Bill Comiskey ND is looking for about a dozen people with Parkinson’s that would be interested in participating in an observational study to validate a nutrition based program to slow the progression of the disease and reduce symptoms. He currently has patients already using the program who are experiencing great results. Contact Dr. Bill Comiskey at bc@keyano.com if you are interested. Check out the video below about a group in Italy that uses a similar program. |
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We Want to Hear From You! |
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Our mission is to help those affected by PD live well. We want to hear your story and bring a spotlight onto members of our community. Email us at stephanie@helpforpd.org and share with us how you are living well today. Please inform us if you are not comfortable with us sharing your story. |
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Help us spread our message by following us on Facebook! Leave us a review and share our page. |
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Help for Parkinson's is always adding interesting and relevant information to our website. Have you checked us out lately? |
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