You are receiving this enewsletter update because you have joined past EAN efforts or expressed an interest in staying informed. Read on for plans underway for Summer, as well as a recap of our busy spring.

• Are you in the epilepsy community and interested in learning more about advocacy? The Epilepsy Leadership Council is hosting the first in a series of webinars on federal advocacy on Wednesday, June 21, 2023, at 4:00 pm Eastern Time. This one-hour webinar is open to individuals with epilepsy, caregivers, physicians and other healthcare providers, researchers, and advocates of all advocacy experience levels. Please join us to hear from leaders in our community on what advocacy is, why it is so important, and how to do it. Register here. Please email elc@aesnet.org with questions.

   

• Stay tuned for opportunities to share your inputs for new authorization and appropriation priorities - coming soon

   

• Are you an epilepsy organization? Join other epilepsy organization stakeholders and sign the FY 24 appropriations letter by contacting: lweidner@efa.org

   

• Advocate for more federal funding for the epilepsies - organizations can become an EAN partner at bit.ly/EANPartner

   

• Danny Did and so can you - urge your Members of Congress to join the Epilepsy Caucus by contacting Mclean.piner@mail.house.gov or kit.devine@mail.house.gov.

You can stay abreast by following our blog and LinkedIn as well as signing up to receive updates like this here. If you have any questions or want to share feedback? Contact Ilene Miller, ilenepennmiller@gmail.com.

A BUSY SPRING RECAP & PHOTOS

Epilepsies Action Network (EAN) - launched Fall 2022 - seeks to use national government relations strategies to increase federal funding for research, translation, care, and cures for the epilepsies. We welcome ALL epilepsies stakeholders who share our vision and mission. The spring was incredibly busy, EAN: 

• Secured 200+ sign ons to letter to Pres. Biden for increased funding for the epilepsies;

   

•  Met with dozens of House & Senate Labor Health & Human Services appropriations offices to advocate for increased funding for translational research and surveillance for the epilepsies;

   

• Celebrated the launch of the first-sever bipartisan Congressional Epilepsy Caucus co-chaired by Reps. Murphy and Costa

   

• Stood up a National Advisory Board comprised of key thought leaders including including former Labor Health & Human Services Secretary Dr. Howard Koh, former NCATS Director Dr. Chris Austin, former House of Representative Member Tony Coehlo, Hollywood actor, caregiver and advocate Greg Grunberg, and many leading clinicians, researchers and advocates;

   

•  Co-convened an Epilepsy Congressional Briefing co-chaired by Epilepsy Caucus Reps. Murphy and Costa with Epilepsy Foundation and many partners to educate Members about the significant unmet needs across the epilepsies and the urgent need for increased federal support (listen here);

   

• Submitted a sign on letter endorsed by 36 epilepsy stakeholders in support of FY 24 appropriations; and

   

• Grew EAN partners to include 24 epilepsy stakeholders! Become a partner at bit.ly/EANPartner.

1st Bipartisan Congressional Epilepsy Caucus

National Advisory Board Launches  

Hollywood Actor Greg Grunberg Welcomes the Congressional Briefing

Clincians, Persons with Epilepsy, & Caregivers Speak Up

36 Orgs Endorse Increased FY 24 Appropriations

Thanks Partner Danny For Helping Recruit More Members of Congress

EANs Partners GROW - Become a Parter - bit.ly/EANPartner