ONE WEEK LEFT!

IT'S NOT TOO LATE TO JOIN US - FOXP1 RACE FOR AWARENESS!!

This is a virtual event, where everyone will race in their local town, at the time of their choice, between Friday Sept 16 - Sunday Sept 18 2022.    We will come together to raise awareness for our loved ones with FOXP1 Syndrome and to help support the FOXP1 foundation 2023 Family Gathering and Conference.

What you have to do:

~ Sign Up individually or form a team with your family and friends   ~   Sign Up online (Link below)

~ Run Walk or Roll any time between Friday Sept 16 -  Sunday Sept 18  

~ Submit your results online.

All proceeds will go directly to funding the 2023 FOXP1 Family Gathering and Conference. 

This event will be the first time for most families to meet others who also have a child with FOXP1 Syndrome.

Thank you to those families and friends who have already signed up - because of you, the foundation has already received over $14,000 in registrations and donations!

SAVE THE DATES!!

The International FOXP1 Foundation will be hosting its first in-person meet up and conference on June 21-23, 2023 in Mineola, NY (near both the JFK and LaGuardia airports).  Please watch our social media pages, and newsletter for more information to come in the next few months.

MONTHLY ZOOM CHAT

**Chats are returning to monthly, rather than bi-monthly**

The International FOXP1 foundation hosts a monthly zoom chat for friends and family of FOXP1.  They are informal chats, led by the participants, on what every topic those individuals want to talk about.  The discussions have been very helpful in sharing information and stories about our Foxes, their development and coping strategies for caretakers.  They have also provided our Foxes the opportunity to say hi to one another!  If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below.  

The next zoom will be held on Saturday, September 17 at 4:00pm EDT.  Please join us!

FUNDRAISER!!

Support the International FOXP1 Foundation with your purchase of this beautiful bracelet set. You can post on your social media sites and place bulk orders to save on shipping.

The set is $35.00 USD plus shipping.

RARE-X DATA COLLECTION PROGRAM

The data collection program is still going strong and several more of our families have enrolled since last month.  Thank you to those who have taken the time to enroll and help move research forward.  We now have 66 families who have enrolled. As of September 2, the US is leading enrollment with 30 families, and the UK closely behind with 7 (as shown with the graph pictured).  It would be great to see a bigger scope of our families throughout the world.  Canada and Australia each have 4, France, Brazil, Germany, and Denmark have 3, with Switzerland following closely behind with 2.  

If you are still unsure about why you should enroll in our data collection program, one big incentive is that having a robust database will enable the International FOXP1 Foundation to generate more interest from clinicians, researchers, and pharmaceutical developers to research, test, and develop drugs, therapies, and a FOXP1 natural history study.

If you have still not viewed the webinar explaining the program, there is a link below to the video on our foundation website, as well as the link to the enrollment form.  Let's take advantage of the opportunity this program presents to the community.

STUDY OPPORTUNITY FOR AGES 13 and OLDER

The Seaver Autism Center is studying behavioral and psychiatric features of FOXP1 syndrome in adolescence after puberty onset.

If interested, please contact Tess Levy at tess.levy@mssm.edu.

AFFILIATION/ASSOCIATION PARTNER!

Billy Footwear works with nonprofits to offer the ability to purchase their shoes at a discount, while also giving back to the nonprofit. They offer a 10% discount on their shoes when purchased through the link https://billyfootwear.com/?ref=foxp1, and give 5% back to our organization.

Please click on the link below to read more about it on their website.

FUNDRAISING!

You can now raise money for the International FOXP1 Foundation while shopping on Amazon.  IFF is now set up on Amazon Smile, all you have to do is use website smile.amazon.com, choose International FOXP1 Foundation as your charity, and shop as you normally would on Amazon - easy! 

NEW SOCIAL MEDIA ACCOUNTS

If you are on Twitter and/or Instagram, please look up and follow the International FOXP1 Foundation.  The Instagram page is under foxp1_intl.  The Twitter page is under FOXP1 Intl.