January Awareness

Month Information

Birth Defects Prevention Month

Blood Donor Month

Cervical Health Awareness Month

Glaucoma Awareness Month

Thyroid Disease Awareness Month

Superior Mesenteric Artery Syndrome Awareness Day (Jan. 28)

Drug and Alcohol Facts Week (Jan. 22-28)

Chronic Traumatic Encephalopathy Awareness (Jan. 30)

Blog Post Feature:

Life With Two Genetic Conditions &

A Love for Music

Hello! My name is Saida and I have two rare chronic diseases that I am diagnosed with: I was born with a rare chronic genetic disease called Partial Trisomy 8q Duplication Syndrome or for short partial 8q duplication syndrome. You may also hear it referred to as Partial Trisomy Of 8q and or Partial Duplication Of 8q.

My genetic condition is congenital, meaning I was diagnosed with it since I was an infant. It is also known as a chromosomal duplication disorder. My condition has affected every cell and DNA I have. Due to this genetic condition, I was born with anomalies as well. In my case, it has also caused me to have mild to moderate medical conditions including Asthma, Scoliosis and various other diagnoses over the years growing up. When I was 2 years old I had to have emergency surgery on my lung due to a ring defect as a result from my genetic condition and the anomalies from the extra chromosome.

Cards for Warriors

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