FOXP1 Family Gathering and Conference

The International FOXP1 Foundation's first Family Gathering and Conference is fast approaching on June 21-23, 2023 in Mineola, NY.

We currently have over 150 people attending, representing six countries. We are so excited for this event, and to be able to share via live streaming to those unable to attend. Please register through the link below in order to receive the zoom link to attend the conference virtually. The three guest speakers, as well as the foundation round table, will be live streamed and you will be able to ask any questions via the zoom chat. The schedule of speakers is posted on the event page. In addition, these presentations will be recorded and posted on the website after the conference.

THANK YOU!!

A big Thank You to Rubber Soul Brewing Co., who held a fundraiser in the month of April, donating $1 of every 16oz designated pour. Their support is very much appreciated.

THANK YOU!!

A big Thank You to Mid Penn Bank, who is graciously sponsoring the 2023 conference at the $2500 level. Their support is very much appreciated.

THANK YOU!!

A big Thank You to Rho, Inc., who is graciously sponsoring the 2023 conference at the $1000 level. Their support is very much appreciated.

THANK YOU!!

A big Thank You to Mowery Environmental, LLC., who is graciously sponsoring the 2023 conference at the $1000 level. Their support is very much appreciated.

THANK YOU!!

A big Thank You to Precision Biosciences, who is graciously sponsoring the 2023 conference at the $1000 level. Their support is very much appreciated.

MONTHLY ZOOM CHAT

The International FOXP1 foundation hosts a monthly zoom chat for friends and family of FOXP1.  They are informal chats, led by the participants, on what every topic those individuals want to talk about.  The discussions have been very helpful in sharing information and stories about our Foxes, their development and coping strategies for caretakers.  They have also provided our Foxes the opportunity to say hi to one another!  If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below.  

The next zoom will be held on Saturday, May 20 at 4:00pm EDT. ***Please note the new start time*** Please join us!

RARE-X DATA COLLECTION PROGRAM

RAREX has announced that the International FOXP1 Foundation currently has 130 families enrolled in the data collection program ~ ours is now among the largest populations at RARE-X ~ congratulations to us all!! Because of this success, we will have an opportunity to compete for several substantial grants that will be used for research; our goals now are to get more enrollment and to get those who are already enrolled to upload their genetic report. At the end of the challenge period, those rare disease communities with the highest enrollment will be most desirable to researchers, and the grants would be used to support those researchers' data analyses. This is an important opportunity to push FOXP1 research forward through our grassroots RARE-X participation, so please do participate! Follow the link below.

If you have enrolled and not already uploaded your genetic report, we are asking you to upload the genetic report as soon as possible, as well as fill out any surveys you may have received. If you are unsure on how to upload a genetic report, please see the video below. Thank you for your attention and consideration!