THANKS FOR JOINING US!

Our first annual Open House was very successful, and we thank all those who were able to join.  It was wonderful to see how far we have come in just a year, and exciting to hear about what's coming in the future.

For those who were unable to make it, the link to the recorded video has been posted to the website, under Past Events and is also linked below,  and will be shared on social media as well.

RARE-X DATA COLLECTION PROGRAM

We have selected RARE-X as our, the foundation’s, partner to launch the first patient-led data collection program for FOXP1 syndrome.

Basically RARE-X is a database platform for our rare disease, FOXP1 syndrome, which will gather in a structured, secure manner our data or information about our children. This ultimately will help researchers, drug developers (pharmaceutical companies) and clinicians understand the syndrome and lead to future treatments that are evidence based.

The foundation in collaboration with RARE-X will be hosting a webinar on Sunday March 13 at 1pm EST, which will explain in more detail what it is. There will be plenty of time at the end for all your questions. This webinar is now posted on the “Events” section of the foundations site and will be recorded and posted at a later date if you are not able to attend. Mark your calendars, and please register to attend!

This is an exciting step forward for all of us.

NEW SOCIAL MEDIA ACCOUNTS

If you are on Twitter and/or Instagram, please look up and follow the International FOXP1 Foundation.  The Instagram page is under foxp1_intl.  The Twitter page is under FOXP1 Intl.

MONTHLY ZOOM CHAT

The International FOXP1 foundation hosts a monthly zoom chat on Saturday afternoons (EST).  They are informal chats, and have been very helpful in sharing information and stories about our Foxes.  If you are interested in joining the zoom, you can register right on our website, under Join Us, Events, and you can RSVP to the zoom right there. The link is also posted below.  

The next zoom will be held on Saturday, February 19 at 3:00pm EST. Beth Denenberg will be the guest speaker. She is a genome scientist at the Children's Hospital of Philadelphia, and will be giving a short Genetics 101 overview, to be followed by free time for questions and other discussion. The zoom invite is located on our website, please register and join us.

AFFILIATION/ASSOCIATION PARTNER!

Billy Footwear works with nonprofits to offer the ability to purchase their shoes at a discount, while also giving back to the nonprofit. They offer a 10% discount on their shoes when purchased through the link https://billyfootwear.com/?ref=foxp1, and give 5% back to our organization.

Please click on the link below to read more about it on their website.

FUNDRAISING!

You can now raise money for the International FOXP1 Foundation while shopping on Amazon.  IFF is now set up on Amazon Smile, all you have to do is use website smile.amazon.com, choose International FOXP1 Foundation as your charity, and shop as you normally would on Amazon - easy!