January NEWSLETTER

January NEWSLETTER

Int'l AE Society's theme for WED 2018 is #StepUp4AE
In a few weeks we will be telling you about the #brainwalk app you can download and join the #StepUp4AE team. Each step you take will be counted by the app from Febraury 1 to February 22nd, World Encephalitis Day (WED). Our goal is to collectively have our steps take us around the world for Autoimmune Encephalitis Awareness.  Watch for the Sponser form we will be sending out so you can fundraise for greater AE awareness.
 
#StepUp4AE 
Send us your AE warrior story. Your story will inspire others! Stories will be shared leading up to and during World Encephalitis Day.
 
#StepUp4AE
Int'l AE Society is producing an awareness video for WED.
Send in pictures of yourself or your loved one with autoimmune encephalitis to be featured in the video. Photos that express an aspect of your AE journey or photos walking, running, or using an assistance device such as cane, walker, wheelchair or scooter to go with the music, a parody of "Walk a Mile in My Shoes",  will fit our theme.
 

Send in my AE Warrior Story or Picture

Highlights from Research
 
Autoimmune Encephalitis  
prevalence = 1.2 per 100,000  Vs Infectious Encephalitis =1.0 per 100,000
 

Autoimmune Encephalitis Epidemiology and a comparison to Infectious Encephalitis>>

Texas Study
Researchers at Houston Methodist believe that a significant number of people diagnosed with schizophrenia or bipolar disorder may actually have a treatable immune system condition. A new research study could have a significant impact on the millions diagnosed with schizophrenia or bipolar disorder, including many homeless.The study will enroll 150 patients diagnosed with schizophrenia or bipolar disorder and 50 healthy people between the ages of 18 and 35 who are willing to undergo a spinal tap to collect a small amount of their cerebral spinal fluid, which will be screened for the presence of antibodies attacking NMDA and other receptors. If abnormal antibodies are discovered, researchers will notify the patient or caregiver, so that they may consider asking their health care provider about treatment options, such as using existing drugs that could suppress the production of the attacking antibodies.

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Japanese Film now playing about a young woman struck down with anti-NMDAr encephalitis
 
“Hachinen-goshi no Hanayome” (The 8-Year Engagement), now showing in theaters. Based on a book the couple wrote, the film was entirely shot in their home of Okayama Prefecture and neighboring areas along the Seto Inland Sea.

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 Int’l Autoimmune Encephalitis Society is a Family/Patient centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. 
 
Driven by the knowledge that “Education is Power”, Int’l AE Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones on Face Book, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.

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