Join our AEP session this weekend, July 10th, as we introduce Dr. Hoffman & Dr. Ulku from UCSF Parnassus, San Francisco. It is an AEP you don't want to miss! Both Dr. Hoffman and Dr. Ulku will be talking about inpatient care!

Advocacy & Empowerment Session

July 10th, 2021 at 11 AM PST

 

 

  • Don't know what Advocacy and Empowerment is? OR wanting to know what our is? Check this out below!

 

  • Do you know anyone or does someone in your family have
    Sickle Cell Disease (SCD)?

  • Are you a caregiver or advocate?

 

The Advocacy and Empowerment Program is created for all stakeholders: clients & families, caregivers, medical students, medical professionals, and advocates. It is designed to explore advocacy and educate to be empowered. 

 

The Advocacy and Empowerment Program consists of one 3 hour webinar designed to empower attendees with core educational content on SCD (Sickle Cell Disease); pain management; emergency preparedness, and the exploration of self-advocacy.

 

 

There will be a variety of presenters’ clients, nurses, physicians, medical professionals, and business professionals sharing and discussing important issues that affect the sickle cell community. It is SCAA's hope that these sessions will help to create a clearer understanding of all the stakeholders' roles as we develop a better perception.

 

 Due to COVID-19 all of the sessions will be conducted thru Zoom video conference until such time we can meet in person. The sign on information will be sent to you through Evite. You will also receive a recording of the zoom session. 

Click here to learn more about our AEP sessions

Hey Sickle Cell community, supporters, and advocates!!

 

SCAASF needs your help with the 2022 T-shirt for next year's annual walk! 

 

The competition will last through July 23rd and the winner of the competition will get a $50 gift card!

 

Those who participate must send their design to crisis@scaasf.org

CHECK OUT OUR NEW VIDEOS ON OUR YOUTUBE CHANNEL

News from our Sickle Cell Community

9 Nonprofits Working in SCD Care Awarded GBT ACCEL Grants

 

By: Mary Chapman

 

To improve life for people with sickle cell disease (SCD), Global Blood Therapeutics (GBT) has awarded grants worth $50,000 each to nine community-based, nonprofit groups and institutions across the U.S. to speed the development and use of sustainable, access-to-care programs. These one-year grants are part of GBT’s Access to Excellent Care for Sickle Cell Patients (ACCEL) grant program, now in its third year.

 
Click here to read this article

Centogene Sets Mission to Cure 100 Rare Diseases in Next 10 Years

 

By: Mary Chapman

 

At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases within the next decade. A leader in the field of genetic diagnostics, Centogene used the June 22 event to present its strategic priorities, outlining its plans to speed the discovery and development of orphan treatments, and to improve access to these therapies for rare conditions.

 
Click here to read this article

How I Strengthen My Son’s Immune System to Keep Him Crisis-free

 

 

By: Somi

 

The trouble with sickle cell disease is that it’s challenging to determine which end of the severity spectrum a person might fall on.A person with sickle cell might do everything correctly — drink water, keep warm, take their medication, get enough rest — and still have severe crises. On the other hand, they might be carefree and barely have any pain. Since we don’t know which cards we’ve been dealt, I prefer to err on the side of caution by complying with (most of) the recommended management guidelines.

 
Click here to read this article

 

Be on the lookout for our bi-weekly newsletters! The beginning and end of every month.

 

Check out our SCAASF website for upcoming events, blood drives, etc.

 

Check out our Facebook, Twitter, and Instagram where we post upcoming events and the latest news.

 

If you've missed previous AEP sessions or haven't check out our YOUTUBE Channel don't forget to do and subscribe to our channel can continue growing and spreading awareness to the general public as well as having the Sickle Cell community voices heard.

 

 

 

Please DONATE to fight the cause!

https://www.scaasf.org/

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