FOXP1 NEWS

JUNE 2023

Welcome to the International FOXP1 Foundation's monthly newsletter.  We hope this will provide you with pertinent and vital information relative to our Fox families, along with getting to know more about our Foundation, our families, and even learn how you can possibly help.

FOXP1 Family Gathering and Conference

 

The recently concluded Family Gathering and Conference 2023 was a wonderful experience for everyone involved!  A big thank you to our sponsors, speakers, and family participants for your participation and support of the FOXP1 community.  The meeting was a smashing success and we're all looking forward to reconvening in 2 years in Europe! 

 

In the meantime, please stay tuned for other communications -- a survey, answers to the questions posed online that we didn't get a chance to address during the meeting itself, and other important follow-ups coming out of the ideas shared and plans made at the conference. The poster boards and some pictures are already on our website. Stay tuned, the recordings of the presentations will be posted as soon as they are available.  The IFF Board and the Conference planning committee would also like to thank all the Ambassadors (some shown in the photo below) as well as the expert volunteers who spoke at the conference, led break-out groups, and/or helped with childcare.  The Conference would not have been the success it was without your and everyone's involvement. 

JOIN US - FOXP1 RACE FOR AWARENESS!!

 

This is a virtual event, where everyone will race in their local town, at the time of their choice, between Friday August 11 - Sunday August 13, 2023.    We will come together to raise awareness for our loved ones with FOXP1 Syndrome and to help support research and any future FOXP1 Family Gatherings/Conferences.

 

What you have to do:

~ Sign Up individually or form a team with your family and friends   ~   Sign Up online (Link below)

~ Run Walk or Roll any time between Friday Aug 11 -  Sunday Aug 13

~ Submit your results online.

 

Get together with your family, friends, neighbors to walk/run/roll to help support our Foxes.

 

 

 

 
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MONTHLY ZOOM CHAT

 

The International FOXP1 foundation hosts a monthly zoom chat for friends and family of FOXP1.  They are informal chats, led by the participants, on what every topic those individuals want to talk about.  The discussions have been very helpful in sharing information and stories about our Foxes, their development and coping strategies for caretakers.  They have also provided our Foxes the opportunity to say hi to one another!  If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below.  

 

The next zoom will be held on Saturday, July 15 at 4:00pm EDT. Please join us!

 

 

 

 
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