Learn more about what is happening locally and nationally.

Parkinson's Spotlight

In Person Classes on Thursday

Over the next few months, we will highlight local in person exercise classes being held each day of the week. This month we are sharing a few classes being held on Thursday.

Why Should YOU Dance?

“The dance class to me is like a PD Support Group. We get together, chat, take the

class, and then chat more. This is one of the few places I feel comfortable making

mistakes and not over think about my symptoms. We are a group of like individuals

taking the class with limited opportunities to have the camaraderie of others in public.

This class gives that to us. The smiles, laughter, and joy that emit from the room can be

amazing. It is one of the activities I truly look forward to attending on a regular basis.”

Bruce – Dance Participant

Read more about Dance Beyond Parkinson's here.

Breaking News: Parkinson's Disease Biomarker Found

The biomarker breakthrough was achieved by an international coalition of scientists led by the Michael J Fox Foundation and its landmark clinical study, Parkinson’s Progression Markers Initiative (PPMI).

"This study resulted in the clearest evidence yet that the presence of a particular misfolded protein, alpha-synuclein, can be used to determine if people have Parkinson’s. It is an advance that may soon be used to develop better diagnostics, but more importantly could rapidly accelerate the search for treatments for the disease." 

Interested in joining a Parkinson's care partner support group?

A message from Nancy Eson:

We are forming a new Capital District Parkinson's care partners support group. These are small groups for those of us who provide care for our loved ones. This group will be meeting in person, to share information and support. If you think you might be interested, please let us know by filling out this brief form.

Celebrate Spring New York

Virtual Educational Events This Month

Parkinson's, Sleep & Me

May 13th 10am EST

Getting adequate rest and sleep is an important component of overall health and quality of life. Parkinson’s disease creates many challenges to getting a good night’s sleep, both for the person with Parkinson’s and the caregiver. This program provides information on how Parkinson's disease affects sleep, and ways you can get a better night's sleep while living with PD.

Young-Onset Parkinson’s Disease: Planning and Your Rights

May 24th 4pm CDT

We will discuss some of the tough topics of living with Parkinson's disease, like deciding to tell your employer about your diagnosis, how to protect yourself financially, formal leave and accommodations, and what steps you can take now.

Managing Changing Symptoms - Binghamton, NY (IN-PERSON)

Please join the Parkinson's Foundation for Managing Changing Symptoms, a free program in Binghamton, NY. After many years of good symptom management, Parkinson’s disease may become more challenging.  Learn how Parkinson’s symptoms may change over time and new strategies available for managing them.

Date: Friday, May 19, 2023

Location: The Riverdale Banquet Hall 2901 Watson Blvd., Endwell, NY 13760
Time: 1 p.m. to 3 p.m. ET (Check-in starts at 12 p.m.)

Self-Image in Women with Parkinson’s

Disease

Kristi LaMonica has co-authored on a new paper addressing the self-image changes that women with PD can have! Nice job Kristi! Below is the abstract of her article. The full article can be found here.

"There is a fundamental gap in knowledge in how Parkinson’s disease manifests an affects women throughout their hormonal life cycle, resulting in unmet needs and adversely impacting women’s quality of life. A set of questionnaires was developed and deployed through Fox Insight (open access) to address these issues by gathering data. This is the data from the first survey. The data from the questions regarding self-image were striking. 61% of women report that their Parkinson’s disease negatively impacts their self-image. Here we explore the negative impact of Parkinson’s disease on women to begin to fill the gaps in knowledge."

We want to hear from you!

Our mission is to help those affected by PD live well. We want to hear your story and bring a spotlight onto members of our community. Email us at stephanie@helpforpd.org and share with us how you are living well today.

Please inform us if you are not comfortable with us sharing your story.

Follow us on Facebook

Help us spread our message by following us on Facebook! Leave us a review and share our page.

Help for Parkinson's is always adding interesting and relevant information to our website. Have you checked us out lately?