HelpForPD.org

February Newsletter

Learn more about what is happening locally and nationally.

In Person Classes on Mondays

Over the next few months, we will highlight local in person exercise classes being held each day of the week. This month we are sharing a few classes being held on Mondays.

Neuromotor Wellness


Monday 12 PM
Guilderland YMCA
 

This class is a research-based exercise program to slow disease progression, restore motor function, and increase longevity and quality of life.
Participants should be able to walk and stand unassisted.
You must be a member.


Contact: Jill Cullen

518-456-3634 ext 1140 or
jcullen@cdymca.org

Read more and schedule

 

Cycle for PD


Monday/Thursday 11 AM
Pedaling for Parkinson’s - Clifton Park YMCA


Monday’s 11am – 12pm
Thursday’s 11 am – 12pm

This class is specifically designed for people with Parkinson's. Led by an instructor, participants cycle on an indoor stationary bike for 1 hour: 10-minute warm up at 60 RPM, 40 minutes at 80-90 RPM and a 10 minute cool down

Contact: Thor Lampman

518-371-2139

Low Impact Cardio and Strength

 

Monday Tuesday Wednesday Thursday Friday mornings
Saratoga Regional YMCA
 

This 45-minute low impact class focuses on increasing muscular strength, endurance, and cardio-respiratory health.  We will utilize hand weights, balls and a chair- all provided.

Read more and schedule

Exercise Classes For Those With A 9-5

While most people with PD are older, we know those with YOPD or those who still work are at a disadvantage with accessing exercise classes. Here are a list of options both in person and virtually that are outside of typical work hours.

Live in person:

Ring of Hope Rock Steady Boxing Saturday 10am

 

 Live virtually:

Pedaling for Parkinson's Saturday 9am

Dance for PD PRO class Monday 5:30pm

Parkinson's Exercise Program 4 You (There are several options listed.  Please note that the time is in PST)

 

 Pre recorded:

Parkinson Place

Rogue Physical Therapy (Almost 200 HIIT, PWR!, strength, and general exercise videos) 

Parkinson's Cabin Fever Dance Party!

Join us for a “fun-raiser” for HelpForPD.org to help the local Parkinson’s community gain access to the resources necessary to Live Well with Parkinson’s.

 

Meet friends, enjoy the live music provide by the local band GB-five, dance,

eat, drink and provide Help for people with Parkinson's in the Greater

Capital Region and those who care for them.

 

The cost of admission is $40. You can purchase your admission ticket via check, credit card, Venmo, or PayPal.

 

Checks can be payable to "Help for Parkinson's" and mailed to 1 Persimmon Place, Saratoga Springs, NY 12866

Please write "PD March fundraiser" in the note on the check.

 

You can go to www.helpforpd.org/march4th to pay with card.

 

Venmo: @H_F_PD  

PayPal: PayPal.Me/helpforpd or @helpforpd (Account is listed as healthy parkinson's communities of the greater capital region)

If you are paying with Venmo or PayPal, please include your name and PD March Fundraiser in the note section.

New Women's Support Group

Women face different challenges than men, such as higher divorce rates

and other psychosocial burdens, increased drug sensitivity that continues to go unstudied, hormonal impacts and efficacy of therapies etc.

 

One major unmet need of women is that there is not a space available for women in our community to learn more about these differences and connect with other women impacted by PD.

 

To address this unmet need, Kristi LaMonica and Stephanie Soto have created a new support group. The group will meet via zoom on the second Wednesday of the month at 7pm starting February 8th. Interested in joining? Email kristi.lamonica@gmail.com and sesoto6@gmail.com

Ride With Us!

Parkinson’s Revolution is an indoor cycling experience that combines passion, determination and community to generate awareness and advance our mission toward a cure. Join us in this awesome fundraising event!

 

SATURDAY, FEBRUARY 25, 2023 AT 10:30 AM

The Revolution: 639 Loudon Road, Latham, NY 12110

Register Today!

SLIM SHAKY Goes Viral

SLIM SHAKY is a Parkinson's rap anthem that captures the struggle and the strength of two vibrant women who live with it every day.

Wearables Study for Parkinson's

The purpose of the study is to evaluate if a health technology (involving smartphone and a smart wearable) can help improve patient reported outcomes in patients with Parkinson’s disease. 

Join Today

Early Biomarker for PD?

A recent study published in the journal of Nature Medicine called “Artificial intelligence-enabled detection and assessment of Parkinson's disease using nocturnal breathing signals” (Yang et al., 2022) showed promising results for potentially recognizing individuals with PD before their actual diagnosis.

 

The authors developed an artificial intelligence (AI) enabled system that could reliably:

  1. Predict the presence or development of PD with 90% accuracy

  2. Track PD progression and estimate PD severity

  3. Provide an objective, non-invasive, at-home assessment of PD while a person is asleep, without touching the body

  4. Combine measurements from multiple nights to achieve optimal test accuracy

  5. Provide nightly and weekly measurements in a person’s home

  6. Eventually be deployed in the homes of individuals at high risk for PD (e.g., those with the LRKK2 gene mutation) to passively monitor their status and provide feedback to their provider

 

More work needs to be done to test the AI system in larger and more diverse populations, but it sure is promising so far!

Virtual Educational Events This Month

Redefining Intimacy in Parkinson's Disease & Beyond

February 15th, 1-2pm

Learn how others are navigating intimacy changes and challenges during this candid, virtual conversation.

 

APDA Virtual Parkinson’s Conference: Educate, Empower, Engage

February 15-16, 12-3:30 pm

A two-day event designed to educate, empower, and engage those with PD and their care partners.

Learn about less common symptoms of PD, anxiety and cognitive behavioral therapy, pros and cons of DB, care partner perspectives, GI issues & PD, the science behind PD and singing, and more.

 

Parkinson’s Educational Webinar: The Importance of Estate and Will Planning February 21st, 1pm

Discuss the importance of having the proper documents for financial and medical decisions.

Review documents such as Last Will and Testament, Durable General Power of Attorney and Advance Medical Directive

Summarize the process and importance of estate planning.

We want to hear from you!

Our mission is to help those affected by PD live well. We want to hear your story and bring a spotlight onto members of our community. Email us at stephanie@helpforpd.org and share with us how you are living well today.

 

Please inform us if you are not comfortable with us sharing your story.

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