GIVING TUESDAY IS COMING!

Giving Tuesday is an International fundraising event.

It is an opportunity to donate your time or money to a charity of your choice. The FOXP1 Foundation is a registered non-profit organization in the United States.

Your donations will support the International FOXP1 Foundation and members of our community.  The foundation's priorities for 2023 are to host the FOXP1 Family Gathering and Conference, enhance the Data Collection Program, and develop research projects. Read more about it at the link below, along with the opportunity to donate.

MONTHLY ZOOM CHAT

The International FOXP1 foundation hosts a monthly zoom chat for friends and family of FOXP1.  They are informal chats, led by the participants, on what every topic those individuals want to talk about.  The discussions have been very helpful in sharing information and stories about our Foxes, their development and coping strategies for caretakers.  They have also provided our Foxes the opportunity to say hi to one another!  If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below.  

The next zoom will be held on Saturday, November 19 at 4:00pm EDT.  Please join us!

REGISTRATION NOW OPEN!!

The International FOXP1 Foundation will be hosting its first in-person meet up and conference on June 21-23, 2023 in Mineola, NY (near both the JFK and LaGuardia airports). 

The Foundation's mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, encouraging research, and raising awareness - The Family Gathering and Conference 2023 will help make that a reality.

Please consider joining us in person and sign up with the link below. We hope to see you there!

WE NEED YOUR HELP!!

The Foundation needs your help to get sponsors for our Family Gathering & Conference. Please share this flyer with your family, friends, and colleagues.

FUNDRAISER!!

Support the International FOXP1 Foundation with your purchase of this beautiful bracelet set. You can post on your social media sites and place bulk orders to save on shipping. They would make great holiday presents.

The set is $35.00 USD plus shipping.

RARE-X DATA COLLECTION PROGRAM

The data collection program is still going strong and several more of our families have enrolled since last month.  Thank you to those who have taken the time to enroll and help move research forward.  We now have 75 families who have enrolled. As of October 21, the US is leading enrollment with 37 families, and the UK and Germany following behind with 8 and 6 respectively (as shown with the graph pictured).  It would be great to see a bigger scope of our families throughout the world.  Canada, France, Brazil, Italy, and Australia each have 4. Switzerland and Denmark have 3.  

If you are still unsure about why you should enroll in our data collection program, one big incentive is that having a robust database will enable the International FOXP1 Foundation to generate more interest from clinicians, researchers, and pharmaceutical developers to research, test, and develop drugs, therapies, and a FOXP1 natural history study.

If you have still not viewed the webinar explaining the program, there is a link below to the video on our foundation website, as well as the link to the enrollment form.  Let's take advantage of the opportunity this program presents to the community.

STUDY OPPORTUNITY FOR AGES 13 and OLDER

The Seaver Autism Center is studying behavioral and psychiatric features of FOXP1 syndrome in adolescence after puberty onset.

If interested, please contact Tess Levy at tess.levy@mssm.edu.

AFFILIATION/ASSOCIATION PARTNER!

Billy Footwear works with nonprofits to offer the ability to purchase their shoes at a discount, while also giving back to the nonprofit. They offer a 10% discount on their shoes when purchased through the link https://billyfootwear.com/?ref=foxp1, and give 5% back to our organization.

Please click on the link below to read more about it on their website.

FUNDRAISING!

You can now raise money for the International FOXP1 Foundation while shopping on Amazon.  IFF is now set up on Amazon Smile, all you have to do is use website smile.amazon.com, choose International FOXP1 Foundation as your charity, and shop as you normally would on Amazon - easy! 

NEW SOCIAL MEDIA ACCOUNTS

If you are on Twitter and/or Instagram, please look up and follow the International FOXP1 Foundation.  The Instagram page is under foxp1_intl.  The Twitter page is under FOXP1 Intl.