HelpForPD.org

June Newsletter

Learn more about what is happening locally and nationally.

Parkinson's Spotlight

 Each month, we will be selecting a member of our community to highlight their amazing contributions towards helping those with PD live well today.

 

 

This month we have selected

Rachelle Smith-Stallman!

 

 

Check our her story here

In Person Classes on Friday

Over the next few months, we will highlight local in person exercise classes being held each day of the week. This month we are sharing a few classes being held on Friday.

Schott's Boxing

 

21 Vatrano Road, Albany, NY 12205
518-641-9064

Friday’s 10:30 AM - 11:30 AM

Participants are asked to pay $5 for each class.
First time attendees will be asked to buy hand wraps for $10.00 and come 15-20 minutes early to get some initial instructions.

Pedaling for Parkinson's - Guilderland YMCA

 

10:30 – 11:30 AM

Guilderland YMCA
250 Winding Brook Dr.
Guilderland, NY 12084
518-456-3634
Contact: Jill Cullen

Tai Chi - YMCA

 

 8:30am at the Wilton YMCA

 

Tai Chi is often described as meditation in motion because it promotes serenity through gentle movements, connecting the mind and the body. This graceful form of exercise can help reduce stress and increase balance with regular practice.  The instructor will explain the health benefits of Tai Chi and how it may help while acknowledging a member’s self reported physical strength and limitations.

Association of Early Weight Change With Cognitive Decline in Patients With Parkinson Disease

 A study published in the American Academy of Neurology examined whether early weight change is associated with changes cognitive function in Parkinson disease.

 

A total of 358 patients with early PD were classified into weight loss (decrease of >3% body weight during the first year), weight maintenance, and weight gain (increase of >3%) groups.

 

Researchers found that weight loss in people with recently diagnosed PD was associated with a faster decline of global cognitive function (attention and memory) and executive function (multitasking or problem solving).  However, early weight gain was associated with a slower progression of decline.

 

The connection between weight and cognition is not fully understood, but diet and the gut-brain connection may play an even bigger role! Talk with your health care professional to make sure you are meeting the recommended nutritional values for your age and activity level to reduce your chances of losing weight!

Living Well in the Capital Region

In April, more than 80 people with Parkinson's, care partners, family members, and wellness professionals attended the event. After the event, participants were surveyed and this is what they had to say:

 

100% people said they learned about at least one new resource in their community.

 

92% said they now know who they can turn to for support in their community.

 

77% said they plan to start participating in something new as a result of the event.

 

70% said they learned something new about Parkinson’s as a result of the event.

 

100% said they would recommend a Davis Phinney Foundation community event to others.

 

100% said they felt like they had a better understanding of existing community resources and said they made a new connection or strengthened an existing relationship.

 

Missed out on this event? Make sure you are subscribed to the Davis Phinney newsletter and check out our blog posts and newsletter for future events!

With Gratitude, Optimism Is Sustainable

I am sure many of you have seen his interview, but it is worth sharing again. "With gratitude, optimism Is sustainable." What a powerful quote.

He recently released a new documentary called STILL: A Michael J. Fox Movie.  You can watch it on Apple TV.

Virtual Educational Events This Month

Parkinson's 101: What You and Your Family Should Know

June 7th 1pm EST

This program will provide a basic overview of Parkinson’s disease. Learn about what Parkinson’s is, what causes it, common symptoms, treatments, and strategies for managing symptoms.

 

 Dr. Gilbert Hosts: Sex, Intimacy, and Parkinson’s Disease

June 12th 1pm EST

On this broadcast, you will learn how Parkinson’s disease symptoms can interfere with a sexual relationship, how to broach the subject of intimacy with your partner, when to talk to your doctor about intimacy or sexual issues, strategies for people with PD and their partners to strengthen (or rebuild) intimacy, and connection, and more!

Dr. Koepp will also answer your questions LIVE during the program, so register today to reserve your spot!

 

REPLAY: From Low Blood Pressure to Bladder Problems: A Look at Lesser-Known Parkinson’s Symptoms

June 15th 12pm EST

Low blood pressure, bladder problems, constipation and sweating are all common symptoms of PD, though they’re rarely talked about. This month, we’ll replay our popular webinar on lesser-known symptoms of Parkinson’s disease. In this webinar, our expert panelists discuss these autonomic issues and ways to treat them.

EVERY VICTORY COUNTS CHALLENGE 

The Every Victory Counts Challenge celebrates every victory, big and small, and highlights the importance of exercise for living well with Parkinson’s.

 

Participants create their own challenge for the month and choose to run, cycle, log walking miles, dance, box, swim, or any combination of activity to join in the event at your pace and your place. The event welcomes with open arms everyone from ultra-runners and cyclists to people who want extra motivation to walk around their block every day. 

 

This event takes place during the entire month of July, so make sure to sign up this month to prepare!

 
Register

The Michael J. Fox Foundation's Virtual Run/Walk

June 17th 2023

The Michael J. Fox Foundation (MJFF) established the Run/Walk Series (formerly known as the Fox Trot) in 2017 in New York City. Since then, the Series has evolved and expanded to several locations across the United States. 
 

These family-friendly events connect those living with Parkinson's, their loved ones, supporters and community partners. The Run/Walk Series has raised more than $6 million and included over 18,000 participants across the United States and internationally! 

 

All proceeds from the Run/Walk Series go directly to MJFF's high-impact research programs to work towards better treatments and a cure for Parkinson's. 

Register

Next Month: Hope Soars Fundraiser with the ValleyCats!

July 22rd, 2023

Picnic at 5:30 pm; Game at 6:30 pm

 

 

Benefiting the Hope Soars Parkinson's Research Fund at Albany Medical Center.

$30 Ticket includes a Seat, Dinner and ValleyCats Cap!

 

 

TICKETS: Call Mark Burek at 518-428-0056
 

 

Or bring a check or cash to Schott's PD Boxing at 10:30 on any Friday before July 22, 2023

We want to hear from you!

Our mission is to help those affected by PD live well. We want to hear your story and bring a spotlight onto members of our community. Email us at stephanie@helpforpd.org and share with us how you are living well today.

 

Please inform us if you are not comfortable with us sharing your story.

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