Pacific NW Angelman Syndrome Foundation Fall Newsletter 2018 Check out all our latest updates |
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Great Wolf Lodge Grand Mound, Washington December 7th - 9th, 2018 It is that time of the year again and we have reserved our date for the annual Great Wolf Lodge visit. See the Events Tab on the foundation's website www.pnwasf.org for more information and how to register and reserve your room.Unlike previous years, you will need to contact GWL directly to make your reservation. 15 rooms are available for Saturday night at the subsidized flat rate of $100 5 rooms are available for Friday at the regular group rate of $189 + tax. All rooms accommodate up to 6 people. Members are responsible for an additional charge of $30 each for each occupant over 6. Group rate is only available for members so please ensure your annual membership dues are current. See Membership Tab on the website to renew your yearly dues. |
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Farewell to our Treasurer Sherri Rein Sherri has served as the Pacific NW Angelman Syndrome Foundation Treasurer for more than ten years. She has notified the Board that she will be leaving the position beginning next year. Her dedication to the foundation as the Treasurer, as well as from many years as an active member, are priceless. Sherri's laugh and positive attitude are infectious! We ask you to join us all in thanking her for her ability to keep the foundation compliant and operating for so many years. She has committed to ensuring a smooth transition to the incumbent Treasurer by offering to share documents, offer training and answer questions as needed. See our Wanted: Volunteer Treasure Position for more details on the open position within the organization. Thank you Sherri! |
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WANTED: Volunteer Treasurer Position Pacific NW Angelman Syndrome Foundation (PNWASF) is an entirely volunteer organization that serves individuals with Angelman Syndrome and their families throughout the Pacific Northwest. PNWASF is seeking a volunteer Treasurer. Some background in accounting is required. It is expected that this role will necessitate approximately 20 hours of volunteer work per year. Responsibilities include: - Annual corporate filing
- Annual non-profit filing
- Manage banking and PayPal accounts; including reconciliation of financials using Quicken
- Annual self-audit of financials to be provided to the Board of Governors
- Provide an annual financial report to Board of Governors and periodic reports throughout the year as requested
- Respond to emails within 2-3 days of receipt
- Provide customer service to vendors as needed
- Attend quarterly Board of Governors calls as needed
If you have any questions about this position please reach out to the PNWASF Board President, Justin Platts at justinplatts@gmail.com We appreciate your support of our volunteer led organization and encourage you to share this opportunity with anyone you think may be interested in this position. |
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Best Wishes to the The Webb Family Sarah Webb served on the Board of Directors for many years with a emphasis on the role of reinventing and maintaining the foundation's website. Her family has moved to Utah and it was necessary for her to step down as a Director. The Board thanks her for the contribution of her and her husband, Jeremiah, for the initial renovation of the website and also for her time and effort put into keeping the website up to date and current while also caring for her four children. With her continuing contribution and innovation she has kept our web presence viable in the 21st century. We wish her and her family all the best in their new home. We would like to welcome our newest Board Member, Matt Sponer, as our new webmaster. |
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Family Retreat & Business Meeting Save the Date! March 1-3, 2019 Comfort Inn Suites 2520 SE Stratus Avenue McMinnville, OR 97128 The family retreat is a great opportunity to meet other families in the PNW. There are many opportunities for families and members to explore the area of the venue. Saturday morning is the mandatory business meeting and at least one adult member of the attending family must attend. Fellow members will discuss the future of the organization and vote for any open Board Member positons. The foundation will have an opening for President, as well as for Directors. This year the Retreat will be held in McMinnville, Oregon with some of the following local attractions: | | |
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Help grow our donations Donate directly by visiting the PNWASF website www.pnwasf.org and click the DONATE button - choose a one time or monthly donation |
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Shop with Amazon Smile When you shop with Amazon start with https://smile.amazon.com Choose Pacific Northwest Angelman Syndrome Foundation and Amazon will donate 0.5% of your purchases. There is no cost to you and all donations come from the Amazon Smile Foundation. |
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Participate in the Fred Meyer Community Rewards Program. Register your Fred Meyer card at https://www.fredmeyer.com/topic/community-rewards-4 Not only do you earn rewards for yourself when you use your Fred Meyer Rewards Card you can also earn rewards for PNWASF. Use the link above to log into your Fred Meyer account and choose Pacific Northwest Angelman Syndrome Foundation id# 93849 and start donating with every purchase. There is no cost to you other than taking the time to register. |
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