Welcome to the International FOXP1 Foundation's monthly newsletter. We hope this will provide you with pertinent and vital information relative to our Fox families, along with getting to know more about our Foundation, our families, and even learn how you can possibly help. |
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MAY FOXP1 WEBINAR Welcome to the FOXP1 Webinar series. Dr. Cora Taylor will present behaviour management strategies of children with developmental delays, followed by an open floor for questions from parents. Dr Taylor holds the position of assistant professor and clinical psychologist at Geisinger Autism & Developmental Medicine, and is a member of the FOXP1 Foundation Scientific Advisory Board. We are very pleased that Dr Taylor is able to share with us her in-depth knowledge of behaviour management strategies and techniques. Read more about Dr Taylor on our SAB web page: https://www.foxp1.org/scientific-advisory-board.
Please RSVP this event and include your name and email address, you will then receive an email with the zoom link. This conversation is in English and it will be recorded and posted on our website. The FOXP1 Foundation will host a guest speaker webinar every second month. The next event will be Saturday July 9th at 1:00 PM EDT (NYC time) with Chardell Buchanan a registered Dietitian Nutritionist and coach. ~ Look for and RSVP to this Event! | | |
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NEW FUNDRAISER!! Support the International FOXP1 Foundation with your purchase of this beautiful bracelet set. You can post on your social media sites and place bulk orders to save on shipping. The set is $35.00 USD plus shipping. | | |
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"A Day in the Clouds" by Kayla Monville A children's book about imagination, wonder, and modeling pretend play. Education on FOXP1 Syndrome and Autism. Support the book at Kickstarter (link below) - there are multiple pricing options with great rewards, not to mention supporting inclusive literacy. . | | |
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MONTHLY ZOOM CHAT The International FOXP1 foundation hosts a bi-monthly zoom chat on the third Saturday of every other month. They are informal chats, sometimes with speakers, and have been very helpful in sharing information and stories about our Foxes. If you are interested in joining the zoom, you can register and RSVP right on our website, under Join Us, Events. The link is also posted below. The next zoom will be held on Saturday, June 18 at 3:00pm EST. Please join us! | | |
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RARE-X DATA COLLECTION PROGRAM The data collection program is still going strong and several more of our families have enrolled since last month. Thank you to those who have taken the time to enroll and help move research forward. As of now, the US is leading enrollment with 14 families, and the UK closely behind with 6 (as shown with the graph pictured). It would be great to see a bigger scope of our families throughout the world.
If you are still unsure about why you should enroll in our data collection program, one big incentive is that having a robust database will enable the International FOXP1 Foundation to generate more interest from clinicians, researchers, and pharmaceutical developers to research, test, and develop drugs, therapies, and a FOXP1 natural history study. If you have still not viewed the webinar explaining the program, there is a link below to the video on our foundation website, as well as the link to the enrollment form. Let's take advantage of the opportunity this program presents to the community. | | |
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AFFILIATION/ASSOCIATION PARTNER! Billy Footwear works with nonprofits to offer the ability to purchase their shoes at a discount, while also giving back to the nonprofit. They offer a 10% discount on their shoes when purchased through the link https://billyfootwear.com/?ref=foxp1, and give 5% back to our organization. Please click on the link below to read more about it on their website. | | |
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FUNDRAISING! You can now raise money for the International FOXP1 Foundation while shopping on Amazon. IFF is now set up on Amazon Smile, all you have to do is use website smile.amazon.com, choose International FOXP1 Foundation as your charity, and shop as you normally would on Amazon - easy! | | |
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NEW SOCIAL MEDIA ACCOUNTS If you are on Twitter and/or Instagram, please look up and follow the International FOXP1 Foundation. The Instagram page is under foxp1_intl. The Twitter page is under FOXP1 Intl. |
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