April 2018 Newsletter

#FightandTakeFlight

Our first year is in the books! Bring on year 2!

THANK YOU!

Thank you for your role in helping make our first gala and auction a success! When planning for this event first began, we established 3 objectives. The first was to plan and host a fun and memorable event for members of our Courage Club. Mission accomplished based on the smiles and feedback we received. Our second objective was to spread the word about our organization and our mission, especially in the local medical community. With representatives from several area hospitals and cancer centers present at the event, we were able to share with a new audience who will help us reach more young adults impacted by cancer. Our final object was to, hopefully, raise a bit of money to help grow our programs and increase our impact. The generous support of local businesses, sponsors, donors, attendees, and auction shoppers allowed us to exceed our fundraising goal. We are thrilled!

Thank you to all who attended or supported the event in any way, especially to our sponsors: Charleston Cancer Center, Law Office of Jennifer Williams, Old Whaling Company, Palmetto Exterminators, and Rea Landscape Management.

Courage Club Corner

Members of our Courage Club enjoyed a fun evening at the first annual Boon Gala on April 12th. Survivors attended as guests of The Boon Project, and many brought family and friends as well. We were excited to honor two Courage Club members with awards.
Congratulations Hannah for receiving the

Fight and Take Flight Award.

Congratulations Marielle for receiving the Courage Award.

 

 

 

Also in April, some Courage Club members who are registered to participate in Cancer to 5k attended a dinner hosted by Cancer to 5k coach Meredith at her home. The Ulman Cancer Fund's Keys to Keys team came through town on their way to Key West and we had a great visit!

To learn more about Cancer to 5k, or to register to participate in Charleston's first season of this Ulman Cancer Fund program, please see the Cancer to 5K section of the newsletter, visit Cancerto5k.org, or email Katherine at Katherine@boonproject.org. This program is open to survivors of any age and any running/walking ability level.

May Event

Courage Club members are invited and encouraged to participate in The American Cancer Society's Relay for Life of Charleston County May 11 at 6pm (West Ashley High School). If you already have a team, great! We will see you there!

If you are looking to join a team, we invite you to join our family/church team (link below). Survivors can register for FREE and are invited to attend the survivor dinner during Relay after they have walked the survivor lap. It's a great time to support an amazing cancer fighting organization while also putting a face to young adult cancer!

 
Join Our Relay Team

June Event: Riverdogs!

Join us down at "The Joe" on June1st for a Riverdogs game! All Courage Club members are invited to attend the game (along with their family, significant other, friend, and/or caregiver) free of charge. The Riverdogs have given us a generous amount of tickets, but please RSVP to Katherine@boonproject.org so we know how many are in your party. See you there!

Courage Club Events Coming this Summer:
July Happy Hour: Date TBD
August Wellness Day: Join us for yoga and a "make and take" essentials oil class at Community Yoga on August 4th.

Cancer to 5K!

We are excited to be one of the sponsors of The Ulman Cancer Fund's Cancer to 5K program coming to Charleston in 2018. We're seeking survivor participants and sherpa volunteers to join our team. Practices begin in September and our goal race will be in December 2018. Learn more at the link below. 

 

 
Learn more!

Financial Assistance Grants

We launched a new program in February which provides young adults fighting cancer with the opportunity for financial assistance. Applications are available on our website or by clicking here. Thank you to our generous donors who have allowed us to expand our programs to better serve this community!

Vulnerability and Cancer

A contribution from Blair Grass, who serves as The Boon Project's Young Adult Cancer Guide.

 

Over the past month, I’ve talked to some cancer survivors about their personal experiences with cancer and the vulnerability that is associated with such a life altering diagnosis. Overall the theme was that of dramatic changes that took place at the time of their diagnosis and these changes can be difficult to assess and understand. As young adults, naturally our focus is on health and strength -  we are young and healthy, pursuing education, careers and family. We are moving forward and laying the groundwork for our plan. A cancer diagnosis changes the plan and can leave the patient and their support system vulnerable and exposed.

 

The word vulnerability comes from the Latin root, vulnus, meaning wound. To be vulnerable means being capable of being wounded. The word vulnerable is also synonymous with the words “openness” and “exposure.” I bet many cancer survivors would tell you that the words open and exposed fit with their diagnosis. From the literal exposure of diagnostic exams and surgery to the emotional exposure – vulnerability is often at the root of their emotions and experiences.

 

Briefly some of the experiences my friends shared with me that they said were causes of feeling vulnerable included: Causes of vulnerability: Isolation – not that many of your friends have experienced this

  • Isolation – not knowing many people with your diagnosis, changes in your normal routine
  • Fear
  • Pain
  • Changes in appearance/ability

Financial concerns – cost of treatment, career changes

 

Our society tends to perceive vulnerability as synonymous with weakness, but I don’t. Instead, vulnerability can be the first step in self-awareness that leads to a path of strength, growth and healing. A cancer diagnosis in the midst of your prime can shatter notions of strength and health. Often, the diagnosis opens you up to more tests and procedures – which in their goal of helping do cause pain – rendering you vulnerable in your mission to heal. In this sense, becoming vulnerable is a required step in the healing process – but this does not mean it is a comfortable step or feeling.

 

In reading about the human experience of vulnerability, the opinion of some experts is that even in the discomfort of sharing your vulnerability is a better alternative than suffering in silence and isolation. In the long run identifying the source of the vulnerability, and sharing your experience with friends, family, healthcare providers, can be the first step towards healing.

 

Dr. Brené Brown, a research professor, has done a lot of research on the human experience of vulnerability and says: “It’s about owning our vulnerability and understanding it as the birthplace of courage and the other meaning-making experiences in our lives.” She also says: “Vulnerability is not knowing victory or defeat, it’s understanding the necessity of both; it’s engaging. It’s being all in.”

 

For those of you who have gone through, or are currently going through, a cancer diagnosis I invite you to think about identifying the ways in which you are currently feeling vulnerable. Identify them, label them, make a list. They may vary from day to day or during different phases of your treatment and survivorship. And for each one, put a name or an activity next to it – a person to share with, a place to go, a technique to help improve. And always remember that the BOON project is a place to gather strength and address the vulnerability that a life changing cancer diagnosis brings.

 

I’d like to end with this quote, by Washington Irving: “There is sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are messengers of overwhelming grief…and of unspeakable love.”

 

As always, thanks for reading,

Blair Grass, RN, MSN

 

 

Relevant Reading: “Daring Greatly: How the Courage to Be Vulnerable Transforms the Way We Live, Love, Parent and Lead.” By Brené Brown

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