Dear Advocates and Allies,

It is with a great sense of accomplishment (and still miles to go) that we share with you the immense impact of our collective efforts over the past three weeks of our #IStayHomeforRare campaign and fund, in solidarity with those protecting the lives of children, family members, and friends living with rare diseases during the COVID-19 pandemic.

 

Together in partnership with 13 patient advocacy organizations, Living in the Light has successfully raised $45,000+ and committed those funds towards the immediate relief of families and individuals who are struggling to make ends meet.

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As we enter into our second round of grant funding, we ask you to consider sharing and joining our efforts. If you are able, please contribute your financial support to help raise the additional $55k needed to fulfill grants for the next 70 families awaiting support. 

 

Grants up to $2,500 per household are being fulfilled to assist families immediately struggling to pay for: rent/mortgage, food, utilities, medical bills, transportation, therapeutic equipment, or medical devices. If you or someone you know in the rare disease community are in need of immediate financial relief, please apply now.   

 

We acknowledge this is a time of shared vulnerability, widespread loss, challenge, and triumph. If there is one thing we are certain of, it is that we all are in need of support in some form. We aim to remain entirely transparent in our efforts. If you have any questions, ideas or wish to explore the opportunity to partner, please reply directly to this email. Also, you are welcome to visit www.IStayHomeForRare.org for more information.


We are deeply appreciative of all the contributions that have already come in, as are the families and individuals who have received financial support as a direct corollary of your action. In the coming days and weeks, we will have the opportunity to share personal stories from these families directly, so you can see and learn more about how necessary these grants are.

 

With heart,
Levi Gershkowitz

 

Founder & CEO

Living in the Light

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 We are proud to share a letter from Joan, a Living in the Light participant who wrote to tell us about her experiences with isolation during COVID-19 and since 2005, as a result of living with a nervous system disorder brought on by the use of neuroleptic medications.  

 
Read Joan's Letter
© 2020 Living in the Light. All rights reserved.

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