SEDSConnective June/July news!

SEDSConnective News

The Symptomatic Hypermobility |  EDS HSD I Neurodivergence I Autism I ADHD I Dyspraxia I Tourette's  + Charity

Welcome to our June newsletter! 

Super Sonal! Congratulations to SEDSConnective volunteer Sonal who ran in The Race to the King on 15th June raising awareness for SEDSConnective. 
 
Despite horrible weather conditions and 'relentless hills' Sonal completed the 50 mile race in 9 hours 
 
We are extremely grateful to Sonal and everyone who raises money for us. 
 
If you would like to donate to Sonal's fundraising page you still can below.

Sonal Race Fundraiser

Small Charity Week Monday 24th - Friday 28th June was Small Charity Week and we celebrated this as a small charity ourselves.
 
We were delighted to receive lots of support, likes and shares from our community - all of which continue to help us grow and develop. 
 
We may be small but we have a big heart and really making a difference to you as a voluntary charity. 

SEDSConnective

🏳️‍🌈Pride Month 2024 
Supporting the Neurodivergent community since 2018 With PRIDE and Neurodivergence - we proudly support Pride month during June. 

Loneliness Talk with Dr Grace - Coming Soon! We are excited to announce that our advisor Dr Kana Grace will be sharing a talk for our members very soon on loneliness. 
 
Please keep an eye on our events page for more information on how to sign up.
 
If you would like to volunteer for us to help support the event - please get in touch. General@sedsconnective.org

SEDSConnective Events

Lipoedema Awareness Month  Did you know there are stages of lipoedema / lipoedema? 
 
There are 4 official stages, but you can have changes in the adipose loose connective tissue even before stage 1! 
 
It is always useful to know this as we believe knowledge and understand helps us.
 
We have been sharing advice and tips this month to help spread awareness.

NHS UK

EBSA - Emotional Based School Avoidance Are you or do you have or know of any children or students who have issues attending school due to extreme fatigue, pain, 'anxiety', dizziness, brain fog, confusion, infections, illness, gastro issues, allergies, migraines or injuries?
 
Are they, or are you disbelieved and told that it is all due to neurodevelopmental social, emotional or mental health factors?
 
Our Chair & Founder, Jane Green MBE has been asked again to present at Westminster Insight on 3rd July on these issues, as the new Government Attendance Guidance is being rolled out in mid August. Are you ready?

Westminster Insight

🎉Happy Birthday SEDSConnective!  SEDSConnective will officially turns 6 years old this July!  Look out for more information.  
 
We'd like to say a huge thank you to our members to our trustees and army of volunteers as well as everyone in our community who supports us, follows us and makes us who we are. If you want to raise any funds for us do get in touch. 
 
HAPPY BIRTHDAY TO US!

SEDSConnective History

We need YOU! We are looking for more volunteers to join our team as we head into the summer months to support us as some of our team take a break with their families. 
 
We are specifically looking for help with our social media channels as a summer project. 
 
If you are interested please send in what platforms you can engage in regularly and your keen interests and get in touch - General@sedsconnective.org

Social Media Summer Team

👉 We are looking for lots of volunteers to help with the day-to-day behind the scenes at SEDSConnective. In particular we'd love support from proactive animators with a passion for hypermobility and neurodivergence, fundraisers, those interested in research or writing , copywriters and social media support. 
Please take a look at the volunteering section on our website for more information on how to apply as well as current job specifications here. 
 
Thank you!
The SEDSConnective Team 😎

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