January News and Updates

Tamika Moseley of Everything Health

January Advocacy and Empowerment Speaker

Advocacy & Empowerment Session

January 9th, 2021 11 am PST

 

  • Do you know anyone or does someone in your family have
    Sickle Cell Disease (SCD)?

  • Are you a caregiver or advocate?

 

This is the program for you!​

 

 Welcome

Tamika Moseley of Everything Health  Topic: COVID-19; Evenflo & Supplements

 

The Advocacy and Empowerment Program is created for all stakeholders: clients & families, caregivers, medical students, medical professionals and advocates. It is designed to explore advocacy and educate to be empowered. 

 

The Advocacy and Empowerment Program consists of 3 one hour workshops designed to empower attendees with core educational content on SCD (Sickle Cell Disease) and the exploration of self-advocacy.

 

Further into the session is the implementation of the educational content learned, with journaling, role playing, and discussions pertaining to real-world experiences.

 

There will be a variety of presenters’ clients, nurses, physicians, medical professionals and business professionals sharing and discussing important issues that affect the sickle cell community. It is SCAA's hope that these sessions will help to create a clearer understanding of all the stakeholders' roles as we develop a better perception.

 

*Upon completion of 5 or more sessions you will receive a Health & Wellness Bag, Hertz Nazaire T-shirt & Coloring Books

 

 Due to COVID-19 all of the sessions will be conducted thru Zoom video conference until such time we can meet in person. The sign on information will be sent to you through Evite. You will also receive a recording of the zoom session. 

Sign Up Here

Upcoming Advocacy and Empowerment Sessions

 

February 13th - Stephannie Star - Client living with SC 

     Topic: Subutex - Medical Therapies

 

March 6th - Dr. Carolyn Rowley of Cayenne Wellness 

     Topic: Health & Wellness

Emmaus Support Program Gives US Patients Low-cost Access to Endari

 

Patients who currently lack insurance coverage or financial means to afford treatment may reach out to Endari’s support program by phone at

1-855-723-5646

 
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When a Crisis Starts...

 

Sometimes I’ll experience a “small” crisis that I think I can manage so I would wait for the pain to go all by itself.

If the pain subsides then great, if it gets worse, or stays for more than an hour then I would start to use painkillers.

How about you? How long would you wait? Do you even wait?

Join the Blog Conversation

 
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Hemex Scientists Awarded $100K for Noninvasive Diagnostics Tool for SCD, Other Disorders

 

“Our developers and advisers believe that rapid, noninvasive, ultra low-cost diagnostics will enable entire communities to be screened, helping to eliminate malaria and to diagnose children with sickle cell disease and anemia early enough to get them started on treatments before they become seriously ill,” Patti White, Hemex CEO

 
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https://www.scaasf.org/

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