BARE's Aware during Liver Awareness Month!

October 2022 Newsletter

October is Liver Awareness Month - one of our biggest months of the year! What we love about this month is it allows us to focus on the details of the liver, biliary atresia and share stories that focus on the diagnosis and management of the disease. It is our belief that these types of stories are truly the ones that resonate with families on the BA journey. Throughout the month, BARE will be sharing stories, facts, tips, events and fundraisers all month long! 

 

Cheers,

Jen & Jordan

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Planning is well underway for BARE's first Biliary Atresia Symposium in Chicago, IL on May 5-6, 2023! This is possible due to the generous support of Ann and Robert H. Lurie Children's Hospital of Chicago. With the help of our Medical Advisory Council and community members such as you, we are creating an agenda that will drive education, innovation and bring together families impacted by BA. We will continue to update our community regarding agenda, registration, hotels etc., as we finalize.

 

Can't wait to see you all in the windy city!

Have You Heard The News?

 

BARE will debut its first podcast episodes this month! Our podcast, fittingly called BARE IT ALL, strips away all the made-for-social-media fluff and focuses on real topics that people in the BA community face but often don't talk about.

Keep your eyes out for when it drops and when it does, please support us by listening, liking, sharing and providing input! 

Get Your T-Shirts!

 BARE partnered with Custom Ink to design two shirts for adults and children. For every shirt purchased, BARE will receive a portion of the proceeds. The more shirts that are purchased, the larger percentage of the proceeds we get!

 

Please help us help the BA community today!

 Visit the links below!

BARE October 2022 Fundraiser, Supporting BARE INC NFP

BARE was created to help solve some of the deficiencies and frustrations that currently exist in the Biliary Atresia community. We believe creating an organization dedicated solely to Biliary Atresia, will help propel progress in finding a cause, treatment and one day, a cure.

BARE October 2022 Fundraiser, Supporting BARE INC NFP

BARE was created to help solve some of the deficiencies and frustrations that currently exist in the Biliary Atresia community. We believe creating an organization dedicated solely to Biliary Atresia, will help propel progress in finding a cause, treatment and one day, a cure.

BARE 2.0

New Website Coming!

 

Our website is getting a facelift and we're adding some new content! We are aiming to launch the new site by the end of the month and we are so excited about providing families with useful and informative content.

 

Stay tuned for more! 

Colleen's BA 5K  

 

On October 8th, Team BARE virtually participated in Colleen's BA 5k in Baltimore, MD. Colleen passed away at the age of 19 from complications of biliary atresia. Her family established this run as a way to honor her memory and make a change for others suffering from this horrible liver disease. For more information, you can visit: https://colleensba5k.org/ 

Fundraising 

 

Although we will be providing posts and items for fundraising, we encourage individuals to start their own fundraisers in their network! This is a great way to reach your network - the people who truly understand the impact this disease has had on you and your family.  Interested in setting a fundraiser up soon?

Email us and we would be happy to assist you with it! 

 

Top Recent Fundraisers - THANK YOU! 

Danielle Victoria 

Sarah Gaona

Alex Lau 

Terri Fowler

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