Meningioma Companion 

understands the fear that comes with the brain tumor diagnosis.

I can still feel the racing of my heart and utter confusion when I first heard my neurologist say, "You have a brain tumor." I can remember how lost I felt Googling this condition and how obsessed I became with the survival rates. I will never forget how scared I was to tell people I had a brain tumor and how hesitant I was to inform my workplace. The anxiety, worry, loss of sleep, fear, sadness, loneliness, and overall disappointment that this was my new normal quickly molded a side of me I no longer recognized. It was like being dropped in the dark forest as the quote above states and the fear of never getting out of the forest felt heavier than anything I ever experienced before. 

As many of you know I am Angel, the Founder of Meningioma Companion. My goal is to bring light to the darkness and connect our community, in person, in real time so that no patient has to walk in the dark forest alone. We are stronger together and our shared experience, knowledge, support, and warm friendship can truly change what our unknown journey looks like. It's been a decade since my diagnosis and I can officially say I am more at peace with it now than I ever have been. It takes work, it is a process with many highs and lows, but the most important thing I have learned is that togetherness, with people experiencing a similar path, helps a bunch. 

I look forward to lending you support on your journey. If you are reading this and wish to join a Brain Tumor Zoom Support Group (BTZSG) I posted the schedule below. You may think you don't need that kind of support but I assure you, if you just give it a try, you will feel more hope, inspiration, kindness, understanding, and all the "heartfelt feels" that others in your life cannot give you because they just simply "Do not get it!" Meningioma Companion does "get it" and our supportive community is here for you!

Happy Fall Season!

Angel

Join a Brain Tumor Zoom Support Group!

Reply to this email or text Meningioma Companion at 424-239-9366 to save your seat! 

TIPS FROM YOUR PEERS!

Here are some tips from our zoom groups! #braintumorlife

1) Rick Simpson Oil (RSO) for Cancer: Does It Work? Can RSO Treat Cancer? Cannabis oils that contain THC may help control nausea and vomiting for people who are going through chemotherapy. There's also evidence that they can treat pain and improve appetite. But research has not shown that RSO or other forms of cannabis oil can treat cancer. Some very early studies on using THC to treat cancer have been encouraging, though. In animals and in the lab, studies have found that THC and other cannabis chemicals can stop the growth of tumors. These lab studies have looked at cells related to lung, skin, breast, prostate, and other cancers. They've found that cannabis can in some cases stop the cancer cells from spreading. Other research on THC and other cannabis compounds shows that they may kill off cancer cells while sparing healthy cells.

2) Be surgery ready and prevent any possible mishaps! If you are on medications and especially if you have any allergies, pre-printing multiple copies of your information for the variety of doctors you will engage with on your craniotomy day is a brilliant idea. Remeber to include your first and last name and date-of-birth on this list!

3) Getting extra calcium and protein as we age is important! A good amount of calcium and vitamin D combined helps to build back your skull bone post craniotomy too. One of our members really enjoyed the drinks made by fairlife. Check them out and see if they could benefit your nutrition routine. https://fairlife.com/nutrition-plan/

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*The information provided in this newsletter is not to be perceived as medical advice, simply information that is shared by brain tumor peers. Meningioma Companion is not contracted or paid to promote any of the people, companies, or groups that are shared on this platform. To unsubscribe from Meningioma Companions monthly newsletter reply STOP to this email and if willing please share why you decided to leave.