Moving from Surviving to Thriving: Autistic Individuals share regional perspectives

Today, on #WorldAutismAwarenessDay, we celebrate the unique perspectives and strengths of autistic individuals. At Bloom Buddy Telehealth, we are deeply committed to amplifying autistic voices, fostering inclusion, and promoting education for all.

Education as a Fundamental Right for All

In this article, our CEO/Co-founder, Sola Fatoba, dives into the topic of education as a fundamental right for all individuals, especially autistic individuals. She highlights the glaring gaps in meeting the educational needs of autistic individuals in Nigeria and proposes strategies that society and the government can adopt to address these gaps.

Amplifying Autistic Voices: Empowering Inclusion and Education

Autistic self-advocacy plays a pivotal role in empowering individuals on the autism spectrum, challenging stereotypes and embracing the diversity within the autistic community. Autism spectrum disorder (ASD) affects approximately 1 in 100 children globally, which is approximately 1-2% of children worldwide, with an estimated 52 million cases in 2010. It occurs in all racial, ethnic, and socioeconomic groups, but is more than 4 times more common among boys than girls.

Despite the progressiveness of today’s world, autistic individuals still face a myriad of challenges in society, significantly impacting their ability to live independently, integrate into community settings, and they generally have lower employment rates compared to other disability groups, with many facing barriers in achieving higher education and stable employment. The lack of understanding and accommodations in educational institutions and workplaces further complicate these challenges.

According to the Financial Times in 2020, Nigerians are regarded one of the most educated migrants in the US with more than 54 per cent of migrants likely to occupy management positions, compared with 32 per cent of the total foreign-born population and 39 per cent of the US-born population. As Nigerians, we pride ourselves in education, however, there is a stark contrast for our educational passion and outlook that is not reflected in our educational systems. The current educational landscape reflects that Nigeria has over 100,000 private primary and secondary schools and about 10,000 public schools as of 2020. Despite this, there are only 1,177 dedicated special needs schools with on meager 33,603 inclusive schools (Federal Ministry of Education/Educeleb) that accommodate the approximated 19 million special needs students in Nigeria, of which 1 in 100 are projected to be autistic.

Education continues to emerge as a key pillar in fostering empowerment and inclusion, acting as a bridge towards neurodiverse individuals' successful integration into various facets of life, including sustainable employment and leadership roles. A major barrier to professional career spirals up in impact to the ability of autistic individuals access to education and this makes it critical to amplify autistic voices for greater representation and inclusion in society.

Inclusion and education are not just ideals but practical pathways to amplifying autistic voices and ensuring their rightful place in society. Through inclusive education, we not only uphold human rights, but also pave the way for a more equitable community, underscored by the principles of the sustainable development goals.

In Nigeria, education is considered a fundamental right for all individuals, including those with special needs. The National Policy on Education mandates free education at all levels for persons with special needs, demonstrating a commitment to inclusivity and accessibility. However, despite these provisions, there remains a significant gap in meeting the educational needs of autistic individuals.

In 2013, the policy was revised to categorize special needs persons into various groups, including individuals with learning disabilities, multiple disabilities, gifted and talented, and albinism. This revision aimed to provide a more comprehensive framework for addressing the diverse needs of individuals with special needs. Yet, despite these efforts, many schools in Nigeria are ill-equipped to accommodate autistic individuals.

According to the United Nations, approximately 25% of most populations globally are comprised of individuals with special needs. This statistic underscores the importance of ensuring that educational institutions are adequately prepared to support and accommodate diverse learning needs.

However, the reality in Nigeria paints a different picture. Despite the legal mandate for free education for persons with special needs, many schools lack the necessary resources, training, and infrastructure to provide effective support for autistic individuals. This lack of accommodation not only deprives autistic students of their right to education but also perpetuates barriers to their social inclusion and overall well-being.

The challenges faced by autistic individuals in accessing education in Nigeria are multifaceted. Firstly, there is a lack of awareness and understanding of autism among educators and school administrators. Many teachers are not adequately trained to recognize and support the unique learning needs of autistic students. As a result, autistic individuals may struggle to thrive in traditional classroom settings, leading to feelings of isolation and exclusion. The physical environment of many schools in Nigeria may not be conducive to the sensory needs of autistic individuals. Bright lights, loud noises, and crowded spaces can be overwhelming and distressing for autistic students, making it difficult for them to focus and engage in learning activities.

Furthermore, the curriculum and teaching methods employed in Nigerian schools may not be tailored to accommodate the diverse learning styles of autistic individuals. Traditional teaching approaches that rely heavily on verbal instruction and rote memorization may not effectively cater to the needs of autistic students, who may benefit from alternative teaching strategies such as visual aids and hands-on activities.

Addressing these challenges requires a concerted effort from multiple stakeholders, including government agencies, educational institutions, advocacy groups, and the broader community. Firstly, there is a need for increased investment in teacher training programs that focus on autism awareness and evidence-based strategies for supporting autistic students in the classroom.

Schools need to prioritize the creation of autism-friendly learning environments that are designed to meet the sensory needs of autistic individuals. This may involve making modifications to the physical layout of classrooms, providing sensory accommodations such as noise-canceling headphones and visual schedules, and offering alternative learning spaces for students who need a break from the sensory stimuli of the classroom.

There is also a need for curriculum reform to ensure that educational materials and teaching methods are inclusive and accessible to autistic individuals. This may involve incorporating more diverse perspectives and learning modalities into the curriculum, as well as providing support services such as speech therapy and occupational therapy to address the specific needs of autistic students.

In Nigeria, we have to step up our collective quest to empower autistic voices, we must recognize the pivotal role society plays in nurturing an environment of inclusion and support. As a society, we must take these actionable steps to promote autism inclusivity to accomodate the unique needs of neurodiverse individuals. The onus lies on us to advocate and for our government to lay the groundwork by mandating the right policies that support inclusion.

The need to navigate the road ahead, advocating for policy change and awareness becomes paramount in amplifying autistic voices and fostering a culture of inclusion. Nigeria can take a leap forward in pushing for significant educational policy changes and increased awareness that not only benefit individuals with autism but also enrich our society as a whole.

Ensuring access to education for every child is a cornerstone of a successful society, as it lays the foundation for our future. This right is just as vital for neurodiverse individuals as it is for neurotypical ones. By providing equal educational opportunities, we not only empower autistic voices but also unlock doors to previously unattainable opportunities.

The movement towards a society where autistic individuals can thrive and contribute their unique talents, abilities, and perspectives begins in the educational environment. When we prioritize inclusive education that caters to the diverse needs of all learners, we set the stage for success not only in the classroom but also in the professional workplace and beyond.

Continual advocacy for policy change and awareness is essential to drive this movement forward to foster a culture that not only accepts but celebrates differences, creating an environment where autistic individuals can lead fulfilling lives and we create a brighter future for all.

Check out resources from Autism Speaks, for Parents/Caregivers and Schools