May is here which means summer is right around the corner! Since May's monthly membership meeting otherwise falls on Memorial Day Monday (5/31), we are going to postpone our monthly Membership meeting to June 7 at 2 PM ET. We will cancel the June 28th mtg and plan to meet again end of July. Our informal meet and greet chat will start at 1:30 PM ET.
Please sign up for a FOCUS Group here to share your feedback on REN progress and promise. Meetings are 30 minutes each and will be conducted between May 10 - 19.
Also if you have not already, please add your inputs to the genetic report survey. The more insights by disease the better. Your insights will help REN's work group improve these reports for your patients and providers!
The Rare Epilepsies Conference presented by the Upper MidWest Epilepsy Foundations is this Friday-Saturday. See the agenda here. Shout outs to Tracy Dixon-Salazar, Yssa DeWoody and Amanda Moore who are presenting. Register FREE and share with your constituents to learn more about what to do when nothing has worked, the pipeline for new and emerging therapies, supporting physical, mental and cognitive health, Planning for the future and more
Invites to participate in research, meet the NEW CC, upcoming conferences and news! Keep reading.