Aloha,

 

Your input is needed!

 

Everybody knows that a Parkinson’s diagnosis doesn’t just affect overall health, it can also lead to increased costs to patients and families. Some costs are tangible, such as co-pays for doctor’s visits and medications, but others are more difficult to quantify, such as taking time off work to care for a loved one with the condition.

 

The Michael J. Fox Foundation, with support from the Parkinson’s Foundation, several industry groups (Acadia, Acorda, Adamas and Biogen), the American Parkinson Disease Association and The Parkinson Alliance is sponsoring a 'Financial and Social Impact of Parkinson's' study that will be conducted by the Lewin Group, a health care consulting firm.

 

They have invited everybody to participate in a survey to help researchers better understand the costs associated with Parkinson’s and the impact the condition has on family finances. The survey findings will be shared with lawmakers in order to advocate for public policy changes that can help reduce Parkinson’s expenses, such as increased funding for research and comprehensive access to health care services.

 

The survey should take about 40 minutes to complete and will remain open until November 7.

 

To take the survey click here:

The Financial and Social Impact of Parkinson's Disease Survey

 

This is a very important survey that will directly impact governmental funding for Parkinson's in the future. Please make time in your busy schedule to complete this survey.

 

Mahlo, Jerry Boster

 

 

Jerry Boster
President
Hawai'i Parkinson Association

info@parkinsonshawaii.org
808-219-8874

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