HPA's Annual Symposium 

April 28, 2018

8:00AM to Noon

Aloha Tower Marketplace

Click here to register: http://www.parkinsonshawaii.org/symposium2018

Support Group News

http://www.parkinsonshawaii.org/support-groups-and-classes

  • Oahu ~ Honolulu Area Support Group ~ First Thursday of each month, 1:30-3PM.

Next meeting will be Thursday, March 1.  The group is meeting at Central Union Church (1660 South Beretania, Women's Building).

 

  • Oahu ~ Hawaii Kai Support Group ~ Second Saturday of month, March 10, 10-11:30 AM, Hawaii Kai Retirement Community 428 Kawaihae St., Hawaii Kai, HI 96825.

 

  • Oahu ~ Hawaii Kai Caregiver Support Group  Second Saturday of month, March 10, 10:30-11:30AM, Hawaii Kai Retirement Community 428 Kawaihae St., Hawaii Kai, HI 96825. 

 

  • Oahu ~ Windward Support Group ~ Fourth Tuesday of month, 3-4:30 PM. Castle Hospital Wellness Center, Kailua. Next meeting will be February 27.

 

  • Oahu ~ North Shore Support Group ~ First Saturday of month, 10AM at United Church of Christ in Waialua (right next to the high school).  Next meeting March 3.  

 

  • Oahu ~ Young Onset/Movers and Shakers ~ First Saturday of month, 10-11:30 AM Regency Park Condos Recreation Center (access via Chaminade University campus).  Next meeting March 3. 

 

  • Big Island, Waimea Support Group ~ Second Wednesday of the month, from 1-2:30 PM at Tutu’s House in Waimea.  Next meeting will be March 14.  

 

  • Big Island, Hilo Support Group ~ Last Friday of every month, 2-4 PM.  Meets at Office of Aging, Hilo: 1055 Kinoole St #101.  Next meeting will be today February 16.  We have moved the meeting this month to Feb. 16th.  We are so fortunate to have guest speaker Laurie K Mischley, ND PhD MPH, physician/ researcher from Seattle Integrative Medicine and Bastyr University--“The Next Generation of PD: What Does the Future Look Like?” Laurie speaks on many topics and you will have the opportunity to ask questions. Check out her website. Interesting retreats are available in Arizona. educationismedicine.com/speaking

February Hawaii Island Newsletter can be found here.  You can sign up to receive this newsletter via email by filling out a quick form here.

 

  • Kauai Support Group ~ Last Tuesday of month, 5-6:30 PM.  At Regency Puakea (2130 Kaneka Street, Lihue) in the activity room from 5:00 - 6:30 pm.  Next meeting is February 27,  Nordic Walk Exursions held by Nordic Walk Hawaii: nordicwalkhawaii.weebly.com.  Walks usually are held Wednesdays 8:30-10:30 AM

 

  • Kauai North Support Group ~ *NEW* Second Tuesday of the month 5-6:30PM. At The Church of the Pacific. The meetings will be announced once a support group leader is found. 

 

  • Maui Support Group ~ This group is on hold until further notice.

 

Other items of interest~

 

Policy Action Alert-MJFF Sending out a message advocate.michaeljfox.org

Urge Congress to Fund a National Parkinson's Database
Currently, we do not have accurate and comprehensive information on how many people are living with Parkinson's disease, who they are and where they are located. Scientists need access to this information to further research and help bring new therapies to market.
In 2016, Congress passed legislation to create the National Neurological Conditions Surveillance System, designed to gather vital patient demographic information. This would allow scientists to better understand neurological diseases, including Parkinson's, and refine their research. However, the system was never funded and has not been implemented.
Congress is debating the Fiscal Year 2018 budget and has limited time to make spending decisions. Urge your lawmakers to provide this system with full funding and finally make it a reality.

Click here to learn more: Take action now

 

AARP's Upcoming Events

Home for Life Workshop: Learn about planning for aging in your cureent home. Saturday, Feb 17th from 9AM to Noon at the Honolulu Japanese Cultural Center, 2454 S. Beretania. To register call 1-877-926-8300 or online at https://aarp.event.com/home2-17 (scroll down to see flyer below)

Caregiver Conference: Featuring three topics: What caregivers want and how to help them get it; Challenging behaviors in dementia care, Recognizing unmet needs; The case for caring for yourself-The medical consequences of caregiver stress. Saturday, March 24, from 8AM-Noon at the Honolulu Japanese Cultural Center.  To register call 1-877-926-8300 or online at https://aarp.event.com/care3-24  (scroll down to see flyer below)

 

Kauai Caregivers

Attention Kauai Caregivers! Join Alzheimer Association Aloha Chapter for a free 12-session Family Caregiver Training on Fridays from 2:00–3:30 p.m. starting February 23 through June 8 at the Agency On Elderly Affairs. FOR MORE INFORMATION OR TO REGISTER, PLEASE CALL 245-3200 ext. 8242 or email hblanco@alz.org.

 

Participate in research from your home

Researchers from the University of Rochester’s Department of Neurology are conducting a study to identify the needs of people living with Parkinson’s and opinions and knowledge about palliative care. The online survey will take an estimated 20 minutes to complete and ask questions about your Parkinson’s, symptoms and care

The survey will ask questions about your Parkinson disease, your current quality of life, the presence of controlled and uncontrolled symptoms, your thoughts about your own future care, and your opinions and knowledge of palliative care.

Who is eligible? People living with Parkinson’s. Begin the survey to complete eligibility requirements.  The survey is open now. Do it today online by computer, smartphone, tablet or other electronic device.  Click here: TAKE THE SURVEY HERE

 

Survey ~ Anxiety and Parkinson's Disease

A new survey from The Parkinson Alliance (www.parkinsonalliance.org) is available and open until June 15, 2018.  It is open to ALL individuals with PD, including individuals with and without changes in anxiety.  

Anxiety is a general term for several psychological conditions that can be experienced as nervousness, fear, apprehension, and worry. Anxiety can appear in different forms and at different levels of intensity. It can range in severity from a mild state of uneasiness to full-blown panic attacks marked by heart palpitations, confusion and terror.

There are two ways to complete the survey: Online and Paper and Pencil – website is www.dbs4pd.org. They encourage online as much as possible. The paper option includes a prepaid, return envelope.

Please be advised that the survey is available on-line! The link is https://www.research.net/r/8X9FN3G

Amber Momblow

Program Manager

Hawai'i Parkinson Association

info@parkinsonshawaii.org

info@parkinsonshawaii.org
808-219-8874

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